The following story is an article written by a member of the global bleeding disorders community to the World Federation of Hemophilia (WFH). In this article, Amanuel Abiy from Ethiopia shares his story.
My name is Amanuel Abiy from Ethiopia. I’m a 19-year-old second year student studying Software Engineering at the Addis Ababa Institute of Technology (AAIT) and I’m part of the Ethiopian Hemophilia Society (EHS). At 13 days of age, I was diagnosed with Hemophilia A.
I recently had a successful surgery to remove a schwannoma tumour from the ulnar nerve of my right elbow. Schwannoma tumours grow in the tissue that cover nerves (nerve sheath). The tumour had been there for a long time, and caused me a lot of pain. Lately, I had developed sudden painful jerks through my arm followed by the inability to move my elbow. Lifting things with my right arm would trigger the pain and cause bleeding.
It’s thanks to the work of the World Federation of Hemophilia (WFH) and the Ethiopian Hemophilic Society (EHS) that I was able to go through surgery. The tumour was removed from my elbow on August 17, 2018 with no bleeding. Now my right hand feels good and is pain-free.
The success of my surgery was directly related to donated factor provided by the WFH Humanitarian Aid Program. Without donated factor, my surgery would not have been possible. Donated factor helped me, and it’s helping other people in the Ethiopian bleeding disorders community.
A big thank you to the EHS and the WFH for their constant help!
About the WFH Humanitarian Aid Program
The expanded WFH Humanitarian Aid Program improves the lack of access to care and treatment by providing much needed support for people with inherited bleeding disorders in developing countries. By providing patients with a more predictable and sustainable flow of humanitarian aid donations, the WFH Humanitarian Aid Program makes it possible for patients to receive consistent and reliable access to treatment and care. None of this would be possible without the generous support of Sanofi Genzyme and Sobi, our Visionary Contributors; Grifols, CSL Behring, GC Pharma, our Corporate partners; and Roche and Bayer, our newest donors. To learn more about the WFH Humanitarian Aid Program, visit www.treatmentforall.org