The World Federation of Hemophilia (WFH) Annual Global Survey (AGS) was launched to standardize the collection of data on the global bleeding disorder population. The survey has collected comprehensive demographic and treatment data on bleeding disorders for more than 20 years. The AGS has helped to identify and characterize people with inherited bleeding disorders and has been an invaluable evidence-based decision-making tool for improving care for the community. The AGS has also been an integral part of WFH research activities.
The World Federation of Hemophilia Annual Global Survey 1999-2018, which covers the historical developments and progress of the AGS over the last two decades, was recently published in Haemophilia, the official journal of the WFH. This publication, led by Jeff Stonebraker—the chair of the WFH Data and Demographics committee—highlights the increase in number of patients identified around the world over the last 20 years, as well as the improvements in care.