WFH NETWORK

2016 Twins of the Year help make a difference

The WFH Hemophilia Treatment Centre (HTC) 2016 Twins of the Year have made a significant improvement in the care and diagnosis of people in the bleeding disorders communities of the U.K. and Uganda. The successes realized by this Twinning partnership were result of many collaborative efforts by the Muhimbili National Hospital, the Haemophilia Foundation of Uganda, and the Great Ormond Street Hospital for Children NHS Trust. Special thanks go to Kate Khair and her team for providing invaluable support to the Ugandan team and being an instrumental voice within the community.

The Kampala (Uganda) – London (U.K.) Hemophilia Treatment Centre Twins were able to realize a number of important accomplishments during their participation within the WFH Twinning Program. Successes included conducting medical workshops to train healthcare workers, Village Health Team workers (VHT), and laboratory technicians; diagnosing new patients with bleeding disorders; conducting outreach campaigns to educate people about bleeding disorders; and raising awareness of bleeding disorders through media coverage and TV broadcasts.

The WFH national member organization (NMO) in Uganda—the Haemophilia Foundation of Uganda, located in Mulago National Referral Hospital in the capital of Kampa—contributed greatly to the successes of the medical twinning by leading many important endeavours across the country. At the governmental and healthcare level, the organization encouraged health practitioners to increase their knowledge base and to support better ways for treatment and diagnosis of hemophilia. One way this was done was by training key people at hospitals in the Kasese and Mbarara areas where there are a large number of patients who have been diagnosed with hemophilia. The NMO also worked diligently at the national level in order to add its voice to policy decisions. Many efforts were also undertaken to train village health teams through home visits and community meetings.

The WFH Twinning Program has had a strong impact in the U.K. and Uganda—and the story continues to evolve. The program has allowed the Muhimbili National Hospital, the Haemophilia Foundation of Uganda, and the Great Ormond Street Hospital for Children NHS Trust to take on greater leadership roles and make a real difference. While there is still much work to be done—for example, working with poor families who lack the basic resources to travel to hospitals in Uganda—the progress has been encouraging for all those involved.

The Twinning program is supported by exclusive funding from Pfizer.