WFH NETWORK

7th Youth Leadership Workshop trains tomorrow’s leaders

The 7th Youth Leadership Workshop was held in November in Amsterdam, Netherlands, and featured the highest number of female participants in a youth workshop ever. Tomorrow’s leaders came from all over the world—from Costa Rica to Azerbaijan to New Zealand. The event covered topics such as youth participation, outreach, advocacy, project planning, and fundraising.

The first day of the workshop focused on youth engagement and recruitment, and how to best get people committed to supporting the bleeding disorders community. Later, there was a “Sharing of Best Practices” session, where several participants gave a presentation on access to care in their country, the activities of their national member organizations (NMOs), and the challenges they face in their countries.

Aliabbas Huseynov, Azerbaijan

“The workshop was very informative. It was very useful and pleasant to communicate with representatives of NMOs from different countries.”

On day two, Manon Dagenaar-Dujardin and Evelyn Grimberg of the Dutch Haemophilia Society gave a training session on strategies for inclusion and outreach for women with bleeding disorders. Participants learned the importance of integrating patients with rare bleeding disorders (RBD), women with bleeding disorders, and carriers in their organizations. Many participants said they were inspired by the stories they heard and learned approaches they could bring back to their NMOs in their own countries.

Interactive sessions on advocacy and the benefits of building coalitions were covered by Deniece Chevannes, Director of Health Promotion and Evaluation at Hemophilia of Georgia (U.S.A). Participants learned about how to create mutually beneficial relationships with people in the community, and how to deal with opposition. Chevannes also gave the youth helpful tips on how to best get a message across with members of the media. The workshop ended with James Hunt, Head of Fundraising & Engagement for The Haemophilia Society (U.K.) providing youth with community fundraising strategies, as well as pointers on how to best organize fundraising events.

The WFH wishes to acknowledge the financial contribution of our current Youth Leadership sponsor, Hemophilia of Georgia. Their generosity allows young leaders to attend important Youth Leadership workshops.