WFH NETWORK

A diverse and innovative program awaits: WFH 2016 World Congress

The WFH 2016 World Congress will be held in Orlando from July 24-28, 2016. It is a unique global platform to share experience and expertise on the treatment and management of hemophilia and other inherited bleeding disorders. The WFH is pleased to be organizing this event with the National Hemophilia Foundation (NHF) acting as gracious hosts.

There has been an outstanding level of cooperation at all levels of the WFH 2016 Program Committees to ensure that the program well-represents the global bleeding disorders community.  The program caters to a wide range of interests and expertise from patients to expert clinicians.

In all, there 10 professional development sessions; 10 plenaries; two late breaking trial sessions; 52 congress sessions; and 12 abstract-based free papers sessions.

The Congress will begin on Sunday, July 24, with full and half day professional development sessions and workshops.  In addition to the customary nursing, psychosocial, orthopedic, and physiotherapy sessions, the WFH committees have developed some brand new and exciting presentations this year.

The WFH Nursing and Psychosocial committees will begin each of their respective sessions with a combined two and half-hour session on genetic counselling.  The WFH Laboratory Science and the VWD and bleeding disorders committees have also combined their efforts in developing a three hour workshop on the current issues in the diagnosis and management of VWD.  New topics also include complimentary workshops on clinical research and data collection.

Each day during the Congress, from Monday to Thursday, will open with a general plenary.  The WFH is pleased to announce to have former NASA International Space Station (ISS) Risk Manager, Michael Lutomski, as this year’s special guest plenary speaker on Wednesday, July 27, 2016.  As Risk Manager, Lutomski was responsible for defining and implementing the qualitative and quantitative risk management processes across the organizations and international participants of the ISS Program. He retired from NASA in 2013 and joined Space Exploration Technologies, or SpaceX, where he works as the Director of System Safety and Risk.

For the first time at a WFH World Congress, the general plenary will be followed by two concurrent plenaries: Medical and Multidisciplinary.  The medical plenaries include: Primary Hemostasis presented by Dr. Rodney Camire, associate professor of pediatrics at the University of Pennsylvania and the Children’s Hospital of Philadelphia.

The multidisciplinary program committee is delighted to include their first plenary sessions: Women and bleeding disorders, presented by Dr. Michelle Sholzberg from St. Michel’s Hospital in Toronto; Patient partnerships: the next step in hemophilia care presented by Mr. Vincent Dumez, Co-director of the Office of Collaboration and Patient Partnership, Faculty of Medicine at University of Montreal; Empowerment through self-care with Patrick James Lynch, creator, executive producer, and star of the award-winning hemophilia comedy web series, “Stop The Bleeding!”. Each of these multidisciplinary plenaries will be followed up with 90 minute comprehensive congress session, elaborating on the plenary’s main topic.

The final plenary on Thursday, July 28, will be a combined effort from the medical and multidisciplinary program committees that will highlight ‘what is a bleed’ as defined by a patient and ‘what is the response to treatment’ as defined by healthcare professionals.

The WFH 2016 Congress Program committees have again strived to devise an innovative and dynamic program with broad appeal to clinicians, basic scientists, allied health professionals and patients for the four main days of the Congress.  One of the highlighted sessions will have an interactive component that will engage the on-line community with online surveys and live tweeting, entitled, Get Net-Smart: Privacy Protection, Assessment of Online Information, and Using Web-Based Tools in Bleeding Disorders Care.

The WFH multidisciplinary committees have also developed special track sessions for the patient and healthcare professional in musculoskeletal, laboratory sciences, dental, psychosocial, and nursing disciplines on challenges and solutions to improve treatment and care for the bleeding disorder patient.

The WFH and NHF look forward to welcoming you to Orlando for the next World Congress. Early registration and call for abstracts is open until January 22, 2016, at www.wfh.org/congress.