The Albanian Hemophilia Association held the first-ever summer camp for youth with bleeding disorders this past June in Durres, on the coast of Albania. About twenty people participated in the camp, including the medical team.
The camp was held from June 16 to 21 and saw patients from 12 to 22 years old come together in an idyllic setting. The event gave patients the opportunity to get treatment, receive physiotherapy and participate in physical activities in a welcoming setting. Patients also learned about how to better manage their condition and were taught how to self-infuse on a daily basis.
During the five-day camp participants had the possibility to share experiences and discuss managing their condition and being part of the bleeding disorders community in Albania. Participants also talked about issues that were important to the Albanian Hemophilia Association, such as how to recruit volunteers to help support the local bleeding disorders community. Yulian Tsolov–WFH Regional Manager, Europe—was present at the summer camp to offer suggestions on what the Albanian NMO could work on to better achieve its goals.
The summer camp was a great success. As one participant put it, “We hope that this summer camp will be the start of many others. We are open to cooperating with other NMOs to share our experiences and help them benefit from an event like this the way we did.”