WFH NETWORK

Alliance formed to better understand needs of hemostasis nurses

Nurses play a critical role on the frontline of care in the world of hemostatic and thrombotic disorders, working directly with patients, supporting them, and gathering valuable feedback that is used to help further the development of medical care. In many situations, nurses are the ones spending the most time with patients, helping them manage the challenges of having a hemostatic and thrombotic disorder—and also playing an important part in their social wellbeing.

A new initiative has been launched to better understand and address the needs of hemostasis nurses in the bleeding disorders community. Called the Global Hemostasis Nurses Alliance (GHNA), the initiative is the result of collaboration between the International Society on Thrombosis and Haemostasis (ISTH) and the World Federation of Hemophilia (WFH), in partnership and with initial support from Bayer.

The Steering Committee of the GHNA is composed of experts in thrombosis and hemostasis who have a global perspective of how nursing care should be managed:

  • Regina Butler, Hemophilia Nurse Coordinator, Children’s Hospital of Philadelphia
  • Kate Khair, Nurse Consultant, Great Ormond Street Hospital for Children
  • Maura Malone, Clinical Nurse Specialist, Dartmouth Hitchcock Medical Center
  • Jim Munn, Clinical Nurse and Program Coordinator, University of Michigan
  • Fiona Newall, Director of Nursing Research, Clinical Nurse Consultant, Anticoagulation at the Royal Children’s Hospital (Melbourne)
  • Angela Lambing, Clinical Support Specialist, Educator at Bayer HealthCare

The mission statement of the GHNA is a clearly focused one: “Empower nurses globally, as integral members of the healthcare team, through a unified approach to strengthen nursing practice that continually improves health outcomes for those with hemostatic disorders.” The objective is to optimize health outcomes for patients by leveraging the nursing community to gather treatment-based information, incorporating personal history, experiences and preferences into the process.