Archive
-
Hear our voices: women with inherited bleeding disorders
For years, women with bleeding disorders did not have the same level of recognition as their male counterparts. All too often, they were incorrectly diagnosed,...
-
Clive Smith: managing pain with a bleeding disorder
As a lifelong condition, managing a bleeding disorder is about more than just medical treatment—it’s also about providing patients with emotional support. The World Federation...
-
First WFH Humanitarian Aid donation sent to Kosovo
The World Federation of Hemophilia (WFH) Humanitarian Aid Program has had a strong positive impact on the global bleeding disorders community. The program is a...
-
Global VWD Call to Action leading change around the world
Every important movement starts with the realization that something needs to change, and that that change can happen through collective action. People with von Willebrand...
-
WFH Humanitarian Aid Program helps child go to school
The following story is an article written by a member of the global bleeding disorders community to the World Federation of Hemophilia (WFH). In this...
-
WBDR experience: Titilope A. Adeyemo at the Lagos University Teaching Hospital
The WFH World Bleeding Disorders Registry (WBDR) is a web-based data entry system that provides a platform for a network of hemophilia treatment centres (HTCs)...
-
WFH organizes laboratory coagulation training workshop in Palestine
This past June, the WFH—in cooperation with the Palestinian Ministry of Health and the Palestine Avenir Hemophilia Committee—organized a Laboratory Coagulation Training Workshop in Ramallah,...
-
Second orthopedic symposium held in Azerbaijan
The World Federation of Hemophilia (WFH), in close cooperation with the Public Health and Reforms Center of the Ministry Health of the Azerbaijan Republic, the...
-
Why attend the WFH 2020 World Congress?
The World Federation of Hemophilia (WFH) 2020 World Congress will take place in Kuala Lumpur, Malaysia’s capital, from June 14 to 17, 2020. Participants from...
-
Many firsts at WFH 16th International Musculoskeletal Congress
The World Federation of Hemophilia (WFH) 16th International Musculoskeletal (MSK) Congress—held from May 10 to 12, 2019—was a resounding success. The WFH welcomed 406 professionals...
-
A family affair: meet community leader Madonna McGuire Smith
Madonna McGuire Smith, Executive Director of the Hemophilia Foundation of Oregon (HFO), has been working with the bleeding disorder community for eleven years. She always...
-
2018 Twins of the year announced
The World Federation of Hemophilia (WFH) Twinning Program was developed to improve hemophilia care in emerging countries through a formal, two-way partnership between two hemophilia...
