Archive
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WBDR improves care and data collection in Lagos, Nigeria
At the Lagos University Teaching Hospital Haemophilia Treatment Centre (HTC) in Lagos, Nigeria, clinical management was based mainly on presumptions for many years. Although laboratory...
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WFH Humanitarian Aid Program: changing lives in Nepal
The WFH Humanitarian Aid Program is changing lives of patients with bleeding disorders in Nepal. Donated factor provided by the Program to the local national...
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Fiji Haemophilia Foundation (FHF) now a WFH associate NMO
On October 16, 2020 during the World Federation of Hemophilia (WFH) Annual Meeting of the General Assembly, the Fiji Haemophilia Foundation (FHF) was accredited as...
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ASH ISTH NHF WFH VWD Guidelines Published
On January 7, 2021, the culmination of a multiyear international collaboration was published in Blood Advances: ASH ISTH NHF WFH Guidelines on the Diagnosis of...
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WFH welcomes LADHA as an associate NMO
On October 16, 2020, during the World Federation of Hemophilia (WFH) Annual Meeting of the General Assembly, the Associação Liga dos Amigos de Doentes Hematológicos...
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New England Hemophilia Association takes a global journey
Giving Tuesday began in 2012 with a simple but powerful idea: create a day that encourages people to do good. It has since grown into...
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GAP supports bleeding disorders community in Egypt
In 2016, Egypt was enrolled in a phase II of the WFH Global Alliance for Progress (GAP) Program to help improve diagnosis and advocacy in...
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UniQure Reports Development of Hepatocellular Carcinoma in a Gene Therapy Clinical Trial Participant
Updated 23 December 2020 BioMarin announces no dosing in their hemophilia gene therapy trials temporarily to permit better understanding of the UniQure hemophilia B participant...
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COVID-19 vaccination guidance for people with bleeding disorders
Guidance from the World Federation of Hemophilia (WFH), European Association for Haemophilia and Allied Disorders (EAHAD), European Haemophilia Consortium (EHC), and U.S. National Hemophilia Foundation...
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Compassion to Action: together we can make a lasting impact
The World Federation of Hemophilia (WFH) exists because we believe—as do you—that where you live should never determine your access to care. Every day we...
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Sanofi to resume dosing in fitusiran clinical studies with protocol amendments
Sanofi has announced plans to resume dosing in its ongoing fitusiran clinical studies, lifting the voluntary global hold that was initiated on October 30 to...
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Wishing you a happy New Year!
Have a happy, healthy and safe new year. Que tenga un Año Nuevo feliz, saludable y seguro. Que cette nouvelle année vous apporte bonheur et...
