Archive
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WFH Medical Advisory Board (MAB) supports MASAC’s recommendation on the use and management of emicizumab-kxwh (Hemlibra®) for hemophilia A with and without inhibitors
On December 6, 2018, MASAC—the NHF’s Medical and Scientific Advisory Council—published recommendation #255 entitled, “Recommendation on the Use and Management of Emicizumab-kxwh (Hemlibra®) for Hemophilia...
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Budapest hosts 4th WFH Youth Leadership Workshop
Optimism, energy, and laughter were in abundant display in historic Budapest, Hungary, during the fourth World Federation of Hemophilia (WFH) Youth Leadership Workshop. The Hungarian...
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GAP-organized Multidisciplinary National Hemophilia Forum held in Kyrgyz Republic
The first Multidisciplinary National Hemophilia Forum, organized under the Global Alliance for Progress Program (GAP) was held on September 19 to 20, 2018 in the...
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MSK Congress program to feature new developments
Orthopedists, physical therapists and hematologists from around the world will be gathering this May to listen to leading musculoskeletal experts at the WFH 16th International...
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Meet Rebecca Schaffer – Dentist, Committee Member and 2018 Travel Grant Recipient
World Federation of Hemophilia (WFH) Dental Committee member Rebecca Schaffer’s achievements are impressive. Hailing from Arizona, U.S.A, a friend living with Von Willebrand’s disease and...
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WFH 16th International Musculoskeletal Congress host city in pictures
The WFH 16th International Musculoskeletal Congress will be hosted by the beautiful city of Madrid, Spain, from May 10 to 12, 2019.
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WBDR hits 1,000 patient milestone
The World Federation of Hemophilia (WFH) is happy to announce that on November 28th, 2018 the World Bleeding Disorders Registry (WBDR) reached an important milestone:...
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WFH programs support 8th Russian Scientific and Practical Conference on Hemophilia
Alain Weill—President of the WFH—addressed over 400 participants from national member organizations (NMOs) and Hemophilia Treatment Centres in Armenia, Azerbaijan, Belarus, Georgia, Kazakhstan, Kyrgyzstan, Moldova,...
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Now available: report on the Annual Global Survey 2017
The Report on the World Federation of Hemophilia (WFH) Annual Global Survey (AGS) 2017 is now available in print and online at www.wfh.org/globalsurvey. The report includes...
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Eric Stolte assumes Presidency of WFH USA
On behalf of the Board of Directors, World Federation of Hemophilia (WFH) President Alain Weill is pleased to announce that long-time volunteer and former WFH...
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IHS wins Patient Organisation Project of the Year award
Irish Haemophilia Society (IHS) won the “Patient Organisation Project of the Year award” for their 50th Anniversary program at the Irish Healthcare Awards on October...
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WBDR experience: Civil Service Hospital, Nepal
The WFH World Bleeding Disorders Registry (WBDR) is a web-based data entry system that provides a platform for a network of hemophilia treatment centres (HTCs)...
