Archive
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New and Updated Inhibitor Primer: A comprehensive backgrounder
Inhibitors are a serious treatment complication that can occur when people with hemophilia are exposed to clotting factor concentrates. Some patients may have an immune...
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Workshop marks successful close of GAP in Turkey
A laboratory workshop and symposium was held in Turkey this past December, and, with that event, the Global Alliance for Progress (GAP) program led by...
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Regional MSK Workshop enhances comprehensive care
The World Federation of Hemophilia (WFH) held a regional musculoskeletal (MSK) Workshop for MSK professionals from Central, Eastern and Southern African countries this past October...
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Roche joins the WFH Humanitarian Aid Program
The WFH Humanitarian Aid Program aims to improve the lack of access to care and treatment for people with inherited bleeding disorders in developing countries,...
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CSL Behring today renews commitment to WFH
CSL Behring today announced that the company has renewed its commitment as a Visionary Corporate Partner with the WFH for another three years. This is...
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Head of Nepalese HTC discusses WBDR in video
Bishesh Sharma Poudyal, MD, talks with Donna Coffin, WFH Director, Research & Public Policy about the impact the WFH World Bleeding Disorders Registry (WBDR) is having on the Civil Service...
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World Hemophilia Day and “Reaching Out: The First Step to Care”
On April 17 of this year, our community will come together to celebrate World Hemophilia Day. The theme of this year’s big day is “The...
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Panel discussion on ultrasound at MSK Congress
This May, Madrid will welcome the WFH 16th International Musculoskeletal Congress. This event will feature a rich program covering many of the topics that are...
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Warm welcome for Alain Baumann and the WFH in India
Alain Baumann, CEO of the World Federation of Hemophilia (WFH), visited the daycare centre of KEM Hospital, in Mumbai, India, on December 6, 2018—and was...
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Medical Student, sister, carrier—one youth leader’s story
Jo Kroll, a native of Tartu, Estonia, barely remembers a time in her life when bleeding disorders were not part of her day-to-day life. At...
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WFH publication explores challenges and opportunities of gene therapy
In the first of a series of round table meetings, the World Federation of Hemophilia (WFH) Gene Therapy Round Table was convened in April 2018...
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Miniseries follows families impacted by tainted blood tragedy
A new miniseries, based on the Canadian tainted blood tragedy, premiers on Canadian television and online on January 9, 2019. “Unspeakable” follows the lives of...
