Archive
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Best-practices for COVID-19 covered in session
Tuesday’s session, “Emerging from COVID – defining a new normal”, moderated by Declan Noone, looked at how the COVID-19 pandemic is affecting our community, and...
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Bayer celebrates one year of support of WFH Humanitarian Aid Program
The WFH Humanitarian Aid Program aims to improve the lack of access to care and treatment for people with inherited bleeding disorders in developing countries,...
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Speakers cover the need for long-term data on the safety and efficacy of gene therapy
Tuesday’s session, “Critical need for harmonized post-marketing surveillance in gene therapy” looked at the urgent need for a mechanism to collect long-term data on the...
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Quality of life for PWH discussed in plenary
Yesterday, Deon York, Lay member, WFH Board of Directors, moderated the session “Multidisciplinary plenary: Quality of life”. The session looked at the role of pain...
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Roche: Join our symposia program on “Elevating patient care in hemophilia”
Roche: Join our symposia program on "Elevating patient care in hemophilia"
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Don’t miss the WFH Twinning session
The WFH Twinning Program develops short-term collaborations between hemophilia treatment centres (HTCs), and patient organizations and youth groups—helping to improve treatment and care for people...
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Today’s schedule: sessions at the WFH Virtual Summit on June 16
Here are the sessions happening today at the WFH Virtual Summit. For more information, please click here. 09:00 – 10:00 Medical Plenary: Diagnosis Moderator: Steve Kitchen...
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Multidisciplinary Plenary: “Women aging gracefully”
Yesterday’s session, “Women aging gracefully” offered participants a wealth of information for women with bleeding disorders, and those who care for them. The event identified...
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WFH leadership officially kicks off day 1 of Virtual Summit
The leadership of the World Federation of Hemophilia (WFH) officially kicked of the first day of the WFH Virtual Summit: Connecting the Global Bleeding Disorders...
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Carol Kasper receives the 2020 WFH International Lifetime Achievement Award
Established in 2006, the International Lifetime Achievement Award is given to an individual who has contributed to furthering the mission and goals of the WFH...
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Promise of gene therapy covered in medical plenary
As we enter the gene therapy era for hemophilia, a critical limitation is our knowledge and understanding of the approach. The promise of gene therapy...
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Get the most out of the WFH eLearning Platform
Join WFH Educational Materials Manager, Fiona Robinson, on Wednesday, June 17 at 11am (EDT) in the Showcase Theatre for “Exploring the WFH eLearning Platform: Over...
