Archive
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Gene therapy: Is robust scientific inquiry the missing factor?
Date, time: Friday, December 11 at 10:00 a.m. EST (15:00 UTC/GMT) Zoom link: https://us02web.zoom.us/webinar/register/WN_B-1KYKY1QAqjYYUN1mwP2A On Friday, December 11 at 10:00 a.m. EST (15:00 UTC/GMT), the...
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WFH Webinar: Advocacy during COVID-19: voices from Europe
Date, time: Friday, November 27 at 9:00 a.m. EST (14:00 UTC/GMT) Zoom link: https://us02web.zoom.us/webinar/register/WN_ca3DMOK4TdCT1sgUVlCPVg On Friday, November 27 at 9:00 a.m. EST (14:00 UTC/GMT) the...
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Carlos Safadi Márquez appointed as WFH Vice President, NMO
The World Federation of Hemophilia (WFH) has announced that Carlos Safadi Márquez has been appointed to the WFH Board of Directors as Vice President, NMO...
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Virtual workshop: Creators and innovators: NMOs investing in youth
Date: Thursday, November 26 at 10 a.m. EST Registration link: https://us02web.zoom.us/meeting/register/tZIud-2rrTopHtC4DBP3MlQPiG4KQoObxap3 On Thursday, November 26, at 10 a.m. EST, the World Federation of Hemophilia (WFH)...
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WFH Humanitarian Aid Program resources available on eLearning platform
The WFH Humanitarian Aid Program addresses the lack of access to care and treatment by providing much-needed support for people with inherited bleeding disorders in...
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CSL Behring to discontinue plasma-derived therapy for hemophilia B
CSL Behring has announced the discontinuation of its plasma-derived factor IX concentrate Mononine®, used in the treatment and prevention of bleeding in hemophilia B, citing...
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New WFH Initiative for Women and Girls to launch in November
There is more and more discussion now about women and girls in the bleeding disorders community—but it is not enough, and there is still room...
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Article on the WFH Gene Therapy Registry published
The WFH Gene Therapy Registry (GTR) is a global effort to ensure that safety and efficacy outcomes, as well as patient-important outcomes, are collected over...
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2020 Virtual WFH Gene Therapy Round Table covers new developments
The 2020 WFH Gene Therapy Round Table (GTRT) was held virtually this October, and provided participants with an update on research related to the development...
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Cesar Garrido: a short bio of the new WFH President
Cesar Garrido was elected to a four-year term as World Federation of Hemophilia (WFH) President at the 2020 Annual Meeting of the General Assembly on...
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Global dosing hold in fitusiran trials initiated by Sanofi Genzyme to investigate new adverse events
A joint statement of the World Federation of Hemophilia (WFH), European Haemophilia Consortium (EHC) and National Hemophilia Foundation (NHF) November 6, 2020 – The WFH,...
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Report on the Annual Global Survey 2019 now available
The Report on the World Federation of Hemophilia (WFH) Annual Global Survey (AGS) 2019 is now available online. The report includes global demographic and treatment-related...
