Archive
-
Congress can’t miss session: “Sleep – what is it and why do we need it?”
The World Federation of Hemophilia (WFH) 2020 Multidisciplinary Program Committee is happy to announce a session on a topic that has never been addressed at...
-
A global experience: meet Chris Guelcher
Hemophilia Alliance Travel Grant recipient Chris Guelcher has been serving the global bleeding disorders community for over twenty-five years as a hematology nurse, administrator, researcher...
-
7th Youth Leadership Workshop trains tomorrow’s leaders
The 7th Youth Leadership Workshop was held in November in Amsterdam, Netherlands, and featured the highest number of female participants in a youth workshop ever....
-
WFH mourns passing of Axel Seuser, MD
It is with great sadness that the World Federation of Hemophilia (WFH) learned of the passing of Axel Seuser, MD, a member of the WFH...
-
Novel Therapies eLearning Centre
After decades of a single approach—replacement factor infusion—the treatment landscape for the management of hemophilia is rapidly evolving and numerous exciting research avenues are being...
-
WFH statement on outbreak of novel coronavirus (2019-nCoV)
Introduction On December 31, 2019, Chinese health authorities identified a new (or novel) coronavirus (referred to as 2019-nCoV) through a series of reported cases of...
-
“Get+involved” on World Hemophilia Day 2020
April 17, 2020 is the 30th anniversary of World Hemophilia Day. The longevity of this celebration is proof of the dedication and tight-knit nature of...
-
Felix Abener Flores Oliva in his own words
The WFH Humanitarian Aid Program has sent nearly 7.3 million IUs of factor to Honduras since 2015, and over 4.25 million IUs of factor were...
-
Sharing in Nepal: meet Susan Cutter
At first hesitantly—but then, more confidently, as trust was built—patients attending a recent WFH Nurses Training workshop in Nepal began to share their personal experiences...
-
Leading international treaters to speak at Congress
The World Federation of Hemophilia (WFH) 2020 World Congress will feature a very rich multidisciplinary program geared towards the needs of patients. Experts will be...
-
Gene therapy in hemophilia a hot topic at the WFH Global Forum 2019
Gene therapy in hemophilia featured heavily at the World Federation of Hemophilia Global Forum held in Montréal November 13 to 14, 2019. Glenn Pierce, MD,...
-
Resilient Patients Do Play: Ask Frederica Cassis
Psychosocial Committee Secretary and World Federation of Hemophilia (WFH) Professional Member Frederica Cassis believes that comprehensive education—and a comprehensive healthcare team—are the foundation of the...
