Archive
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WFH has spearheaded a scientific study updating the prevalence of hemophilia to higher numbers than previously estimated
The World Federation of Hemophilia (WFH) has spearheaded a scientific study updating the prevalence of hemophilia to higher numbers than previously estimated and providing, for...
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Three opinions on the benefits of the WFH Africa Summit 2019
The World Federation of Hemophilia (WFH) Africa Summit 2019 on hemophilia and other inherited bleeding disorders is currently taking place in Johannesburg, South Africa. Key...
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Successes highlighted in WFH 2018 Annual Report
There were many accomplishments for the World Federation of Hemophilia (WFH) in 2018. In only twelve months, we held a successful Congress in Glasgow, donated...
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Passionate hematologist and WFH volunteer passes away
On August 12, 2019, Shelby Lee Dietrich—a passionate hematologist and WFH volunteer—passed away at the age of 95. Her death is marked by the WFH,...
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Overcoming obstacles to build a bright future: Kyelle and Mervyn Virgil
Kyelle Virgil, who lives with severe hemophilia A and inhibitors in Trinidad and Tobago, remains undaunted in the face of the obstacles he has confronted...
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Experience of the WFH twinning between Abidjan and Brussels
The World Federation of Hemophilia (WFH) Twinning Program improves care for people with bleeding disorders in emerging countries through a formal, two-way partnership between two...
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Hear our voices: women with inherited bleeding disorders
For years, women with bleeding disorders did not have the same level of recognition as their male counterparts. All too often, they were incorrectly diagnosed,...
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Clive Smith: managing pain with a bleeding disorder
As a lifelong condition, managing a bleeding disorder is about more than just medical treatment—it’s also about providing patients with emotional support. The World Federation...
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First WFH Humanitarian Aid donation sent to Kosovo
The World Federation of Hemophilia (WFH) Humanitarian Aid Program has had a strong positive impact on the global bleeding disorders community. The program is a...
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Global VWD Call to Action leading change around the world
Every important movement starts with the realization that something needs to change, and that that change can happen through collective action. People with von Willebrand...
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WFH Humanitarian Aid Program helps child go to school
The following story is an article written by a member of the global bleeding disorders community to the World Federation of Hemophilia (WFH). In this...
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WBDR experience: Titilope A. Adeyemo at the Lagos University Teaching Hospital
The WFH World Bleeding Disorders Registry (WBDR) is a web-based data entry system that provides a platform for a network of hemophilia treatment centres (HTCs)...
