Archive
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Warm welcome for Alain Baumann and the WFH in India
Alain Baumann, CEO of the World Federation of Hemophilia (WFH), visited the daycare centre of KEM Hospital, in Mumbai, India, on December 6, 2018—and was...
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Medical Student, sister, carrier—one youth leader’s story
Jo Kroll, a native of Tartu, Estonia, barely remembers a time in her life when bleeding disorders were not part of her day-to-day life. At...
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WFH publication explores challenges and opportunities of gene therapy
In the first of a series of round table meetings, the World Federation of Hemophilia (WFH) Gene Therapy Round Table was convened in April 2018...
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Miniseries follows families impacted by tainted blood tragedy
A new miniseries, based on the Canadian tainted blood tragedy, premiers on Canadian television and online on January 9, 2019. “Unspeakable” follows the lives of...
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Kyrgyz Republic hosts Regional Data Collection and Regional Lay Workshops
The World Federation of Hemophilia (WFH) hosted important events in Bishkek, Kyrgyz Republic this past September, including a Data Collection Workshop for Central Asia &...
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The Government of Tunisia affirms support to patients with bleeding disorders
On November 15, 2018, the Ministry of Health of Tunisia signed a Memorandum of Understanding with the World Federation of Hemophilia (WFH) providing a framework...
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WFH GAP program a success in Serbia
The World Federation of Hemophilia (WFH) workshop on von Willebrand Disease (VWD) that took place on December 8th, 2018 in Belgrade, Serbia, marked the successful...
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Happy new year from the WFH
The World Federation of Hemophilia (WFH) wishes you, your friends, your family, and the whole global bleeding disorders community a wonderful new year. Happy 2019!
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WFH supports MASAC’s recommendation on the risks of gene therapy trials for hemophilia
On December 6, 2018, MASAC—the NHF’s Medical and Scientific Advisory Council—published recommendation #254, entitled, “MASAC Document Regarding Risks of Gene Therapy Trials for Hemophilia”. MASAC’s recommendation...
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Sunny skies to wintry days: one youth leader’s journey
Chavez Edgecombe loves a challenge, including one most would think twice about accepting: moving from the warm climes of Nassau, Bahamas to pursue a degree...
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WFH Medical Advisory Board (MAB) supports MASAC’s recommendation on the use and management of emicizumab-kxwh (Hemlibra®) for hemophilia A with and without inhibitors
On December 6, 2018, MASAC—the NHF’s Medical and Scientific Advisory Council—published recommendation #255 entitled, “Recommendation on the Use and Management of Emicizumab-kxwh (Hemlibra®) for Hemophilia...
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Budapest hosts 4th WFH Youth Leadership Workshop
Optimism, energy, and laughter were in abundant display in historic Budapest, Hungary, during the fourth World Federation of Hemophilia (WFH) Youth Leadership Workshop. The Hungarian...
