The World Federation of Hemophilia (WFH) Cornerstone Initiative arose from a desire within the founding WFH national member organizations to provide support, expertise, and training...
The healthcare development work of the World Federation of Hemophilia (WFH) is based on a comprehensive development model that aims to achieve sustainable comprehensive care...
The Ministry of Health and Social Protection (MSPS) in Colombia organized the first international symposium on orphan diseases in November 2015. In 2013, the World...
End-product testing cannot be used to assure viral safety of clotting factor concentrates. The testing used for screening plasma for viral agents, whether performed on...
Congratulations to the 2015 Twins of the Year award winners! The World Federation of Hemophilia (WFH) is proud to celebrate the remarkable achievements of all...
The World Health Organization (WHO) has declared the Zika virus a public health emergency of international concern. They define this as “an extraordinary event which is...
Collecting data from patients with hemophilia is important not only for advocacy purposes, but also to answer important questions about how hemophilia is managed in...
Electronic patient records (EPRs) and databases are not new concepts for people with hemophilia. Generally, electronic patient records are developed as soon as patients are...
By Peter Jones, MD, former WFH Executive Chair of Communications The commitment and dedication of individuals are crucial to the success of any organisation. The...
The United States Food and Drug Administration (FDA) has approved Vonvendi, a recombinant von Willebrand Factor manufactured by Baxalta. The product is approved for on-demand...
Montreal, Canada – November 2015 – The Report on the Annual Global Survey 2014 is now available in print and online at: www.wfh.org/globalsurvey. The 15th...
In the regional hospital of Thies, Senegal, about twenty families sat around a large boardroom table. Many had travelled over an hour by bus to...