Archive
-
A Cornerstone conversation
The World Federation of Hemophilia (WFH) Cornerstone Initiative arose from a desire within the founding WFH national member organizations to provide support, expertise, and training...
-
New interactive tool makes it easier to find the WFH resource you need
The healthcare development work of the World Federation of Hemophilia (WFH) is based on a comprehensive development model that aims to achieve sustainable comprehensive care...
-
Colombian Ministry supports improvements in the provision of care for hemophilia
The Ministry of Health and Social Protection (MSPS) in Colombia organized the first international symposium on orphan diseases in November 2015. In 2013, the World...
-
WFH statement on end-product testing
End-product testing cannot be used to assure viral safety of clotting factor concentrates. The testing used for screening plasma for viral agents, whether performed on...
-
WFH announces the 2015 Twins of the Year
Congratulations to the 2015 Twins of the Year award winners! The World Federation of Hemophilia (WFH) is proud to celebrate the remarkable achievements of all...
-
Zika virus
The World Health Organization (WHO) has declared the Zika virus a public health emergency of international concern. They define this as “an extraordinary event which is...
-
Data collection on a global scale
Collecting data from patients with hemophilia is important not only for advocacy purposes, but also to answer important questions about how hemophilia is managed in...
-
Electronic patient records and databases
Electronic patient records (EPRs) and databases are not new concepts for people with hemophilia. Generally, electronic patient records are developed as soon as patients are...
-
A tribute to Reverend Alan Tanner
By Peter Jones, MD, former WFH Executive Chair of Communications The commitment and dedication of individuals are crucial to the success of any organisation. The...
-
First recombinant von Willebrand Factor approved by FDA
The United States Food and Drug Administration (FDA) has approved Vonvendi, a recombinant von Willebrand Factor manufactured by Baxalta. The product is approved for on-demand...
-
2014 Report Now Available: Annual Global Survey
Montreal, Canada – November 2015 – The Report on the Annual Global Survey 2014 is now available in print and online at: www.wfh.org/globalsurvey. The 15th...
-
The expansion of the WFH Humanitarian Aid Program: Transforming the lives of those most in need
In the regional hospital of Thies, Senegal, about twenty families sat around a large boardroom table. Many had travelled over an hour by bus to...
