Archive
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Webinar: Youth engagement in the bleeding disorders community
Date, time: Saturday, October 24, at 2 p.m. EDT (GMT+7) Zoom link: https://us02web.zoom.us/webinar/register/WN_aVmcsiHvTNKOvLfuCc1p7g On Saturday, October 24, at 2 p.m. EDT (GMT+7, or Thailand time)...
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Thirty years of service. One amazing individual. Meet Kate Khair
Kate Khair’s relationship with our community began over three decades ago at the start of her career as a nurse, when a young man receiving...
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Alain Weill leaves lasting legacy at the WFH
The World Federation of Hemophilia (WFH) Annual Meeting of the General Assembly saw many new faces join the WFH. It also saw Alain Weill complete...
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New President elected at 2020 Annual Meeting of the General Assembly
The World Federation of Hemophilia (WFH) 2020 Annual Meeting of the General Assembly was held yesterday. The event saw a number of important changes brought...
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WFH to hold first-ever Global Summit on women and girls with inherited bleeding disorders
On November 19 to 20, the World Federation of Hemophilia (WFH) is bringing together patients, health care professionals and members of our national member organizations...
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rHEALTH point-of-care device gets NIH support
rHEALTH announced on October 8, 2020 that it was awarded a $1.5 million USD “Direct to Phase II” grant from the National Institutes of Health (NIH)...
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Chinese edition of Haemophilia available on Wiley
Haemophilia, the official journal of the WFH, is an important publication for the inherited bleeding disorders community. Haemophilia is published in English, but there is...
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Roche outlines plan for communicating new findings on emicizumab (Hemlibra)
In a letter to the global hemophilia community, Roche describes its plan for keeping healthcare professionals and patients informed of new efficacy and safety data...
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Reminder: all COVID-19 publications in Haemophilia now free
In April, Wiley—publisher of Haemophilia, the official journal of the World Federation of Hemophilia (WFH)—made all COVID-19-related publications in Haemophilia available for free. That content is still accessible...
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Zambia first country to receive donated emicizumab
The very first donated emicizumab product was given to two patients in Zambia this past spring. The donation is the first of its kind from...
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Catherine Lambert, MD, defends a PhD thesis based on WFH Twinning experiences
Catherine Lambert, MD, recently defended a PhD thesis entitled “Non-substitutive strategies to improve hemophilia care in developing countries. Experience in Côte d’Ivoire.” The project was...
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WFH Advisory: availability of desmopressin pending re-start of intranasal desmopressin manufacture
Update to WFH Notice: Global recall of Octim®/Octostim® desmopressin nasal spray (1.5 mg/ml) by Ferring Pharmaceuticals With ongoing investigation following the mid-July global recall of...
