Archive
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Data collection on a global scale
Collecting data from patients with hemophilia is important not only for advocacy purposes, but also to answer important questions about how hemophilia is managed in...
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Electronic patient records and databases
Electronic patient records (EPRs) and databases are not new concepts for people with hemophilia. Generally, electronic patient records are developed as soon as patients are...
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A tribute to Reverend Alan Tanner
By Peter Jones, MD, former WFH Executive Chair of Communications The commitment and dedication of individuals are crucial to the success of any organisation. The...
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First recombinant von Willebrand Factor approved by FDA
The United States Food and Drug Administration (FDA) has approved Vonvendi, a recombinant von Willebrand Factor manufactured by Baxalta. The product is approved for on-demand...
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2014 Report Now Available: Annual Global Survey
Montreal, Canada – November 2015 – The Report on the Annual Global Survey 2014 is now available in print and online at: www.wfh.org/globalsurvey. The 15th...
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The expansion of the WFH Humanitarian Aid Program: Transforming the lives of those most in need
In the regional hospital of Thies, Senegal, about twenty families sat around a large boardroom table. Many had travelled over an hour by bus to...
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A diverse and innovative program awaits: WFH 2016 World Congress
The WFH 2016 World Congress will be held in Orlando from July 24-28, 2016. It is a unique global platform to share experience and expertise...
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Addressing the need for a comprehensive and integrated approach to healthcare development
Earlier in the fall, I joined a delegation travelling to Senegal where we marked the expansion of the WFH Humanitarian Aid Program. While talking to patients,...
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Historical perspective on the treatment of hemophilia: Understanding the value of experience
As we enter into an era of increased scrutiny over healthcare costs and the associated benefits of providing certain treatment regimens, it has become quite...
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Ninth WFH Global Forum on Research and Treatment Products for Bleeding Disorders
Access to safe and effective treatment products continues to improve each year due to the tireless advocacy from the global bleeding disorders community. This strategic priority...
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World Hemophilia Day: Treatment for All is the vision of all
On April 17, the World Federation of Hemophilia (WFH) is inviting our community to come together and work towards reaching the shared vision of Treatment...
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Over 2.9 million IUs of humanitarian aid donated to date through Project Recovery
The World Federation of Hemophilia (WFH) is leading the effort to change the lack of access to treatment products in developing countries for people with...
