Archive
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Guidelines on von Willebrand disease diagnosis and management: Add YOUR Voice!
von Willebrand disease (VWD) is a rare disease, but one of the most common bleeding disorders, with up to 1 in 1,000 people affected by...
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Gene therapy for other inherited blood disorders
Over 350,000 children are born each year with a severe inherited hemoglobin disorder, which accounts for 3.4 per cent of deaths in children below five...
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IEQAS session—challenges facing laboratories today
Pierre Toulon, Vice-chair of the World Federation of Hemophilia (WFH) Laboratory Sciences Committee, began the session by talking about the technical difficulties some laboratories face,...
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Ekawat Suwantaroj shares artistic talent at Congress
Everyone contributes to the WFH Congress experience in their own way. For Ekawat Suwantaroj of Thailand, sharing comes from the pen.
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Patients inform health policy decisions
No one has better knowledge of life with chronic disease than those directly involved—the patients, their families and those who care for them at home....
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VP Medical Address: New horizons in sight
“The future looks bright for hemophilia,” said Marijke van den Berg, MD, WFH Vice-president Medical, during her plenary lecture addressing past, present and future treatment...
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Congress participants treated to rich Scottish culture
It was a night to remember at the Glasgow Science Centre, with a Glengoyne whisky tasting session and music for everyone.
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Addressing clinical and psychological issues surrounding menstruation and hemophilia
Hemophilia has traditionally been viewed as a condition that affects men but not women. However, both males and females carry the hemophilia gene from one...
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Reminder—date change for “WFH Humanitarian Aid Program: Catalyst towards global”
The session titled “WFH Humanitarian Aid Program: Catalyst towards global change” will take place today from 10:15 to 11:45 in the Showcase Theatre of the...
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Closing the global gap—fifteen years of progress
The achievements of the Global Alliance for Progress (GAP) Program, one of the key WFH development programs, were celebrated on Day 3 of the WFH...
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Not to be missed! WFH Twinning event
The WFH Twinning Program aims to improve hemophilia care in emerging countries through a formal, two-way partnership between two hemophilia organizations or treatment centres.
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World Bleeding Disorders Registry: Moving Forward
The World Bleeding Disorders Registry (WBDR) aims to provide a global platform for hemophilia treatment centres (HTCs) to collect standardized patient data. During the session...
