WFH NETWORK

Article on WFH Gene Therapy Registry published in Haemophilia

A new commentary presenting the World Federation of Hemophilia (WFH) Gene Therapy Registry has been published in Haemophilia, the official journal of the WFH. The World Federation of Hemophilia Gene Therapy Registry; The Case for Global Data Collection and Surveillance, presents the rationale for the need for standardized, global data collection to provide robust ongoing surveillance of safety and efficacy of gene therapy products. The article was authored by Barbara Konkle, MD, WFH Medical member, Donna Coffin, WFH Director, Research & Public Policy, and Glenn Pierce, MD, PhD, WFH Vice President, Medical, along with the registry’s multi-stakeholder steering committee.

To read the article, please click here.