Mitch Semienchuk
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Today’s schedule: sessions at the WFH Virtual Summit on June 17
Here are the sessions happening today at the WFH Virtual Summit. For more information, please click here. 09:00 – 10:00 Free Papers: Late-Breaking Moderator: Mike Makris...
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Best-practices for COVID-19 covered in session
Tuesday’s session, “Emerging from COVID – defining a new normal”, moderated by Declan Noone, looked at how the COVID-19 pandemic is affecting our community, and...
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Speakers cover the need for long-term data on the safety and efficacy of gene therapy
Tuesday’s session, “Critical need for harmonized post-marketing surveillance in gene therapy” looked at the urgent need for a mechanism to collect long-term data on the...
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Quality of life for PWH discussed in plenary
Yesterday, Deon York, Lay member, WFH Board of Directors, moderated the session “Multidisciplinary plenary: Quality of life”. The session looked at the role of pain...
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Today’s schedule: sessions at the WFH Virtual Summit on June 16
Here are the sessions happening today at the WFH Virtual Summit. For more information, please click here. 09:00 – 10:00 Medical Plenary: Diagnosis Moderator: Steve Kitchen...
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Multidisciplinary Plenary: “Women aging gracefully”
Yesterday’s session, “Women aging gracefully” offered participants a wealth of information for women with bleeding disorders, and those who care for them. The event identified...
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WFH leadership officially kicks off day 1 of Virtual Summit
The leadership of the World Federation of Hemophilia (WFH) officially kicked of the first day of the WFH Virtual Summit: Connecting the Global Bleeding Disorders...
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Promise of gene therapy covered in medical plenary
As we enter the gene therapy era for hemophilia, a critical limitation is our knowledge and understanding of the approach. The promise of gene therapy...
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Participants get a closer look at VWD
Yesterday’s session—“VWD, a closer look”—moderated by Dawn Rotellini, WFH Lay Member, covered von Willebrand disease (VWD) and its treatment options, psychosocial issues, perspectives and differences...
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Don’t miss: “Gene therapy: the unfolding story”
“Gene therapy: the unfolding story” will take place at 10am EDT on Thursday, June 18 during the WFH Virtual Summit. This “can’t miss” session will...
