Roddy Doucet
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Ed Kuebler: 2019 Hemophilia Alliance Travel Grant recipient
With twenty-seven years of experience working with the bleeding disorder community, World Federation of Hemophilia (WFH) Psychosocial Committee Chair and 2019 Hemophilia Alliance Travel Grant...
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Overcoming obstacles to build a bright future: Kyelle and Mervyn Virgil
Kyelle Virgil, who lives with severe hemophilia A and inhibitors in Trinidad and Tobago, remains undaunted in the face of the obstacles he has confronted...
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A family affair: meet community leader Madonna McGuire Smith
Madonna McGuire Smith, Executive Director of the Hemophilia Foundation of Oregon (HFO), has been working with the bleeding disorder community for eleven years. She always...
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Chew “Kim” Yin: mother, VWD patient and carrier finds balance
Chew “Kim” Yin understands balance and how difficult it can be to maintain in life if you do not have family and a community there...
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Meet Global Community Membership Program member Veena Selvaratnam
Veena Selvaratnam, MD, an Adult Hematologist at the Ampang Hospital in Malaysia, believes in the power of community. It is one of the reasons she...
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WBDR: a strong foundation for advocacy
Edwin Goh, Vice-President, Hemophilia Society of Malaysia, opened the, “Measuring and Improving Quality of Care for People with Bleeding Disorders” workshop held in Kuala Lumpur—the...
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WFH Global Community Membership Program: one year in
In early 2018, the WFH Philanthropy team launched the WFH Global Community Membership Program (GCMP)—a new way for patients, families, healthcare professionals and other friends...
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Medical Student, sister, carrier—one youth leader’s story
Jo Kroll, a native of Tartu, Estonia, barely remembers a time in her life when bleeding disorders were not part of her day-to-day life. At...
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Budapest hosts 4th WFH Youth Leadership Workshop
Optimism, energy, and laughter were in abundant display in historic Budapest, Hungary, during the fourth World Federation of Hemophilia (WFH) Youth Leadership Workshop. The Hungarian...
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Meet Rebecca Schaffer – Dentist, Committee Member and 2018 Travel Grant Recipient
World Federation of Hemophilia (WFH) Dental Committee member Rebecca Schaffer’s achievements are impressive. Hailing from Arizona, U.S.A, a friend living with Von Willebrand’s disease and...
