World Federation of Hemophilia
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COVID-19 vaccination guidance for people with bleeding disorders
Guidance from the World Federation of Hemophilia (WFH), European Association for Haemophilia and Allied Disorders (EAHAD), European Haemophilia Consortium (EHC), and U.S. National Hemophilia Foundation...
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Sanofi to resume dosing in fitusiran clinical studies with protocol amendments
Sanofi has announced plans to resume dosing in its ongoing fitusiran clinical studies, lifting the voluntary global hold that was initiated on October 30 to...
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Wishing you a happy New Year!
Have a happy, healthy and safe new year. Que tenga un Año Nuevo feliz, saludable y seguro. Que cette nouvelle année vous apporte bonheur et...
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WFH Humanitarian Aid program makes safe circumcision possible in Kenya
In Kenya, circumcision is a deeply ingrained part of the country’s cultural fabric. A boy who isn’t able to get the procedure can often feel...
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Carlos Safadi Márquez appointed as WFH Vice President, NMO
The World Federation of Hemophilia (WFH) has announced that Carlos Safadi Márquez has been appointed to the WFH Board of Directors as Vice President, NMO...
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CSL Behring to discontinue plasma-derived therapy for hemophilia B
CSL Behring has announced the discontinuation of its plasma-derived factor IX concentrate Mononine®, used in the treatment and prevention of bleeding in hemophilia B, citing...
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Global dosing hold in fitusiran trials initiated by Sanofi Genzyme to investigate new adverse events
A joint statement of the World Federation of Hemophilia (WFH), European Haemophilia Consortium (EHC) and National Hemophilia Foundation (NHF) November 6, 2020 – The WFH,...
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Enrollment in gene therapy trials on hold for assessment of interim data: Takeda
Takeda has suspended screening and further enrollment in the clinical studies of its AAV8 gene therapies for the treatment of hemophilia A and B. The...
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Latifa Lamhene and Baiba Ziemele co-opted to WFH Board of Directors
The World Federation of Hemophilia (WFH) 2020 Annual Meeting of the General Assembly was held on October 16, and saw the election of a new...
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rHEALTH point-of-care device gets NIH support
rHEALTH announced on October 8, 2020 that it was awarded a $1.5 million USD “Direct to Phase II” grant from the National Institutes of Health (NIH)...
