World Federation of Hemophilia
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WFH closely monitoring Shire and Roche/Genentech patent dispute
The World Federation of Hemophilia has been closely monitoring the developing situation between Shire and Roche/Genentech and their dispute over patent ownership. We will continue...
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Update: FDA lifts suspension of Fitusiran trial
The United States Food and Drug Administration has agreed to allow Alnylam’s clinical trial of the novel drug Fitusiran to resume. The FDA and Alnylam...
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Filipino patient thankful for successful ankle surgery
The following story is an article written by a member of the global bleeding disorders community to the World Federation of Hemophilia (WFH). In this...
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Lexzar Gabriel Gador thanks the WFH
The following story is an article written by a member of the global bleeding disorders community to the World Federation of Hemophilia (WFH). In this...
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The WFH wishes you a happy new year
Wishing you a happy new year Meilleurs voeux pour la nouvelle année Deseamos un feliz año nuevo
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The Africa Summit Declaration on Hemophilia and Other Inherited Bleeding Disorders
The World Federation of Hemophilia (WFH) Africa Summit on Hemophilia and Other Inherited Bleeding Disorders was held in Dakar, Senegal from November 28 to 29,...
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Sharing my Story: Lilian Graciela Bonilla
The following story is an article written by a member of the global bleeding disorders community to the World Federation of Hemophilia (WFH). In this...
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Alnylam Suspends Fitusiran Dosing due to Thrombotic Event in Phase 2 open-label extension study
The WFH was saddened to learn of the death of a hemophilia A patient taking part in the Phase II trial of fitusiran, in development...
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WFH signs Memorandum of Understanding with newly formed Coalition of the Americas ensuring program development and collaboration within the region
Strengthening the regional presence of the World Federation of Hemophilia (WFH) is one of the organization’s priorities. As the mission of the WFH outlines, together...
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Inquiry to investigate contaminated blood scandal in U.K.
The government of the United Kingdom (U.K.) has announced that a new inquiry will be held to investigate the contaminated blood scandal that occurred primarily...
