World Federation of Hemophilia
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The Africa Summit Declaration on Hemophilia and Other Inherited Bleeding Disorders
The World Federation of Hemophilia (WFH) Africa Summit on Hemophilia and Other Inherited Bleeding Disorders was held in Dakar, Senegal from November 28 to 29,...
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Sharing my Story: Lilian Graciela Bonilla
The following story is an article written by a member of the global bleeding disorders community to the World Federation of Hemophilia (WFH). In this...
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Alnylam Suspends Fitusiran Dosing due to Thrombotic Event in Phase 2 open-label extension study
The WFH was saddened to learn of the death of a hemophilia A patient taking part in the Phase II trial of fitusiran, in development...
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WFH signs Memorandum of Understanding with newly formed Coalition of the Americas ensuring program development and collaboration within the region
Strengthening the regional presence of the World Federation of Hemophilia (WFH) is one of the organization’s priorities. As the mission of the WFH outlines, together...
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Inquiry to investigate contaminated blood scandal in U.K.
The government of the United Kingdom (U.K.) has announced that a new inquiry will be held to investigate the contaminated blood scandal that occurred primarily...
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coreHEM to Support Gene Therapy Research
The WFH would like to inform readers that information in this article has been updated since its first publication. To read all updates, please see...
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Alliance formed to better understand needs of hemostasis nurses
Nurses play a critical role on the frontline of care in the world of hemostatic and thrombotic disorders, working directly with patients, supporting them, and...
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Unexpected cases of sporadic CJD in patients with bleeding disorders reported
Investigators have reported diagnoses of sporadic Creutzfeldt-Jakob disease (sCJD) in two patients with bleeding disorders in the United Kingdom who died in 2014. The WFH...
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The European Haemophilia Consortium highlights Wildbad Kreuth recommendations on optimal treatment of haemophilia in Europe
In light of World Haemophilia Day, the European Haemophilia Consortium (EHC) took the opportunity to highlight an important set of 12 new consensus recommendations directed...
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WFH marks the passing of Lily Heijnen, MD, PhD
It is with great sadness that the World Federation of Hemophilia (WFH) learned of the passing of Lily Heijnen, a valued member of the...
