World Federation of Hemophilia
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Expansion of the WFH Humanitarian Aid Program Demonstrates Significant Results Due to the Contribution of 500 Million IUs Donation of Bioverativ and Sobi
The paradigm shift that has occurred through the expansion of the WFH Humanitarian Aid Program has resulted in significant improvements in the lives of those...
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Roche statement on emicizumab clinical trial adverse event
Roche has released the following statement to the WFH following the death of a patient in a clinical trial. The WFH expresses our sincere condolences...
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The Association française des hémophiles organizing a swim for hemophilia event
The Association française des hémophiles organizing a swim event to support people with hemophilia. The swim meet will give a chance to athletes of...
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New inhibitor therapies have the potential to change hemophilia treatment
Considering that the treatment of hemophilia with inhibitors remains problematic, and that inhibitors may be an important consideration for new approaches such as gene therapy,...
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IHTC-RtW Joint Event at Congress: Discussing realworld solutions
During the WFH 2016 World Congress, a very unique meeting took place, designed to showcase and discuss real-world solutions: the International Hemophilia Training Centre-Reach the...
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WFH Global NMO Training: Supporting bleeding disorders communities all over the world
The WFH leads many endeavours that aim to support bleeding disorders communities all over the world. One of our key programs for doing that is...
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Celebrating the WFH Twinning Program at Congress
The WFH Twinning Program Event held on July 27 during the WFH 2016 World Congress was a special opportunity for participants to connect, share, and...
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WFH Humanitarian Aid Program: Lasting change for those most in need
The success of the WFH Humanitarian Aid Program firmly rests on ensuring a sustainable and predictable supply of treatment products. Evidence of this success was...
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Lessons from NASA: What is an appropriate level of risk?
Since the 1980s, when about 10,000 people with hemophilia tested positive for HIV after receiving contaminated blood, assessing and managing risk has been a core...
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Think of self-care in a new way
In 2007, Patrick Lynch’s younger brother, Adam, died of an intracranial bleed at age 18. Both Patrick and Adam were born with severe hemophilia A....
