World Federation of Hemophilia
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Alliance formed to better understand needs of hemostasis nurses
Nurses play a critical role on the frontline of care in the world of hemostatic and thrombotic disorders, working directly with patients, supporting them, and...
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Unexpected cases of sporadic CJD in patients with bleeding disorders reported
Investigators have reported diagnoses of sporadic Creutzfeldt-Jakob disease (sCJD) in two patients with bleeding disorders in the United Kingdom who died in 2014. The WFH...
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The European Haemophilia Consortium highlights Wildbad Kreuth recommendations on optimal treatment of haemophilia in Europe
In light of World Haemophilia Day, the European Haemophilia Consortium (EHC) took the opportunity to highlight an important set of 12 new consensus recommendations directed...
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WFH marks the passing of Lily Heijnen, MD, PhD
It is with great sadness that the World Federation of Hemophilia (WFH) learned of the passing of Lily Heijnen, a valued member of the...
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Expansion of the WFH Humanitarian Aid Program Demonstrates Significant Results Due to the Contribution of 500 Million IUs Donation of Bioverativ and Sobi
The paradigm shift that has occurred through the expansion of the WFH Humanitarian Aid Program has resulted in significant improvements in the lives of those...
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Roche statement on emicizumab clinical trial adverse event
Roche has released the following statement to the WFH following the death of a patient in a clinical trial. The WFH expresses our sincere condolences...
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The Association française des hémophiles organizing a swim for hemophilia event
The Association française des hémophiles organizing a swim event to support people with hemophilia. The swim meet will give a chance to athletes of...
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A new and exciting aspect of the coagulation system
All the players in the coagulation system are known—or are they? Thrombin is a key enzyme in the system that controls clot formation; too much...
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Celebrating the WFH Twinning Program at Congress
The WFH Twinning Program Event held on July 27 during the WFH 2016 World Congress was a special opportunity for participants to connect, share, and...
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WFH Humanitarian Aid Program: Lasting change for those most in need
The success of the WFH Humanitarian Aid Program firmly rests on ensuring a sustainable and predictable supply of treatment products. Evidence of this success was...
