World Federation of Hemophilia
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Alliance formed to better understand needs of hemostasis nurses
Nurses play a critical role on the frontline of care in the world of hemostatic and thrombotic disorders, working directly with patients, supporting them, and...
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Unexpected cases of sporadic CJD in patients with bleeding disorders reported
Investigators have reported diagnoses of sporadic Creutzfeldt-Jakob disease (sCJD) in two patients with bleeding disorders in the United Kingdom who died in 2014. The WFH...
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The European Haemophilia Consortium highlights Wildbad Kreuth recommendations on optimal treatment of haemophilia in Europe
In light of World Haemophilia Day, the European Haemophilia Consortium (EHC) took the opportunity to highlight an important set of 12 new consensus recommendations directed...
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WFH marks the passing of Lily Heijnen, MD, PhD
It is with great sadness that the World Federation of Hemophilia (WFH) learned of the passing of Lily Heijnen, a valued member of the...
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Expansion of the WFH Humanitarian Aid Program Demonstrates Significant Results Due to the Contribution of 500 Million IUs Donation of Bioverativ and Sobi
The paradigm shift that has occurred through the expansion of the WFH Humanitarian Aid Program has resulted in significant improvements in the lives of those...
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Roche statement on emicizumab clinical trial adverse event
Roche has released the following statement to the WFH following the death of a patient in a clinical trial. The WFH expresses our sincere condolences...
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The Association française des hémophiles organizing a swim for hemophilia event
The Association française des hémophiles organizing a swim event to support people with hemophilia. The swim meet will give a chance to athletes of...
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New inhibitor therapies have the potential to change hemophilia treatment
Considering that the treatment of hemophilia with inhibitors remains problematic, and that inhibitors may be an important consideration for new approaches such as gene therapy,...
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A new and exciting aspect of the coagulation system
All the players in the coagulation system are known—or are they? Thrombin is a key enzyme in the system that controls clot formation; too much...
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Gene therapy delivery options explored
This year’s WFH World Congress featured a session where scientists involved in gene therapy approaches to hemophilia provided updates on developments in the delivery of...
