World Federation of Hemophilia
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WFH Collaboration with EHC and EAHAD in Estonia
For many national hemophilia organizations, the path to improving hemophilia healthcare in their countries comes from the many contributions from both global and regional partners....
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The Forum for Latin America
Over the last few decades, many of the World Federation of Hemophilia (WFH) national member organizations (NMOs) in Latin America have expanded their networks, become...
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World Federation of Hemophilia product selection statement
The selection of safe, effective medicinal products is the responsibility of national regulatory and health agencies. In the case of clotting factor concentrates, whether plasma-derived...
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Colombian Ministry supports improvements in the provision of care for hemophilia
The Ministry of Health and Social Protection (MSPS) in Colombia organized the first international symposium on orphan diseases in November 2015. In 2013, the World...
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WFH statement on end-product testing
End-product testing cannot be used to assure viral safety of clotting factor concentrates. The testing used for screening plasma for viral agents, whether performed on...
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Zika virus
The World Health Organization (WHO) has declared the Zika virus a public health emergency of international concern. They define this as “an extraordinary event which is...
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Electronic patient records and databases
Electronic patient records (EPRs) and databases are not new concepts for people with hemophilia. Generally, electronic patient records are developed as soon as patients are...
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A tribute to Reverend Alan Tanner
By Peter Jones, MD, former WFH Executive Chair of Communications The commitment and dedication of individuals are crucial to the success of any organisation. The...
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First recombinant von Willebrand Factor approved by FDA
The United States Food and Drug Administration (FDA) has approved Vonvendi, a recombinant von Willebrand Factor manufactured by Baxalta. The product is approved for on-demand...
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Homemade jam, Pepaw, and hemophilia
Dylan DeMatteis, already at 15 years of age, is an aspiring filmmaker from Ohio who is an avid fan of rock and roll; he collects...
