World Federation of Hemophilia
-
EMA investigating rare adverse events associated with hepatitis C treatment
The European Medicines Agency (EMA) has started a review of medicines known as direct-acting antivirals used for treating chronic hepatitis C infection. There have been...
-
Access barrier to groundbreaking hepatitis C treatments
New medications unveiled in the last two years have revolutionized the treatment of hepatitis C (HCV) drastically improving patients’ chances of a cure. The challenge...
-
WFH Collaboration with EHC and EAHAD in Estonia
For many national hemophilia organizations, the path to improving hemophilia healthcare in their countries comes from the many contributions from both global and regional partners....
-
Providing guidance on product selection
There are several new treatment products for bleeding disorders available today and over the next couple of years, even more will likely become available to...
-
The Forum for Latin America
Over the last few decades, many of the World Federation of Hemophilia (WFH) national member organizations (NMOs) in Latin America have expanded their networks, become...
-
World Federation of Hemophilia product selection statement
The selection of safe, effective medicinal products is the responsibility of national regulatory and health agencies. In the case of clotting factor concentrates, whether plasma-derived...
-
Colombian Ministry supports improvements in the provision of care for hemophilia
The Ministry of Health and Social Protection (MSPS) in Colombia organized the first international symposium on orphan diseases in November 2015. In 2013, the World...
-
WFH statement on end-product testing
End-product testing cannot be used to assure viral safety of clotting factor concentrates. The testing used for screening plasma for viral agents, whether performed on...
-
Zika virus
The World Health Organization (WHO) has declared the Zika virus a public health emergency of international concern. They define this as “an extraordinary event which is...
-
Electronic patient records and databases
Electronic patient records (EPRs) and databases are not new concepts for people with hemophilia. Generally, electronic patient records are developed as soon as patients are...
