World Federation of Hemophilia
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Lessons from NASA: What is an appropriate level of risk?
Since the 1980s, when about 10,000 people with hemophilia tested positive for HIV after receiving contaminated blood, assessing and managing risk has been a core...
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WFH Humanitarian Aid Program: Lasting change for those most in need
The success of the WFH Humanitarian Aid Program firmly rests on ensuring a sustainable and predictable supply of treatment products. Evidence of this success was...
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Celebrating the WFH Twinning Program at Congress
The WFH Twinning Program Event held on July 27 during the WFH 2016 World Congress was a special opportunity for participants to connect, share, and...
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WFH Global NMO Training: Supporting bleeding disorders communities all over the world
The WFH leads many endeavours that aim to support bleeding disorders communities all over the world. One of our key programs for doing that is...
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IHTC-RtW Joint Event at Congress: Discussing realworld solutions
During the WFH 2016 World Congress, a very unique meeting took place, designed to showcase and discuss real-world solutions: the International Hemophilia Training Centre-Reach the...
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Think of self-care in a new way
In 2007, Patrick Lynch’s younger brother, Adam, died of an intracranial bleed at age 18. Both Patrick and Adam were born with severe hemophilia A....
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WFH signs memorandum of understanding with the Asia Pacific Hemophilia Working Group to support healthcare professionals in the region
The World Federation of Hemophilia (WFH) will collaborate with the Asia Pacific Hemophilia Working Group (APHWG) to help improve care for people with hemophilia and...
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The Face of Inhibitors: Patients, families, and caregivers share their stories
Inhibitors affect between 20 and 40 percent of people with severe hemophilia A. During the WFH 2016 World Congress, patients, families, and caregivers impacted by...
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Gene therapy delivery options explored
This year’s WFH World Congress featured a session where scientists involved in gene therapy approaches to hemophilia provided updates on developments in the delivery of...
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A new and exciting aspect of the coagulation system
All the players in the coagulation system are known—or are they? Thrombin is a key enzyme in the system that controls clot formation; too much...
