WFH NETWORK

Building a Family of Support: World Hemophilia Day 2015

Every year on April 17, World Hemophilia Day is observed around the world in order to increase awareness of hemophilia and other inherited bleeding disorders.

This is a critical effort with an ultimate goal of ensuring better diagnosis and access to care for the millions who have a rare bleeding disorder yet remain without treatment.

This past April 17, the World Federation of Hemophilia (WFH) chose to focus on those who make up the extended family that make a difference in the lives of people with a bleeding disorder.  A significant amount of care, support, and advocacy is done through these extended families: medical teams, friends, and colleagues, as well as immediate relatives.These communities share the ability to come together in large numbers and help improve people’s lives.

This year various opportunities were provided that allowed our community to connect with the extended global bleeding disorder family on the WFH social media networks and the Global Family Tree.  The Global Family Tree is a website created by the WFH as a space for people to share their stories and photos of those who inspire and care for them.  Please go to www.worldhemophiliaday.org to read some of the almost 200 stories shared by people from around the world.

Over the past few years we have been working on having important landmarks lit in red on World Hemophilia Day.  We have encouraged partners to help by having their local landmarks lit up and are very pleased to announce that 20 landmarks were lit in red this year on April 17.  We encourage everyone in the bleeding disorders community to start working now on having your local landmark lit red for next year’s World Hemophilia Day.

  • Zakim Bridge (Boston, Massachusetts)
  • The Prudential Center (Boston, Massachusetts)
  • South Street Station (Boston, Massachusetts)
  • Wells Fargo’s Duke Energy Center (Charlotte, North Carolina)
  • Wrigley Building (Chicago, Illinois)
  • Terminal Tower (Cleveland, Ohio)
  • Coors Field (Denver, Colorado)
  • Miami Tower (Miami, Florida)
  • Mercedes-Benz Superdome (New Orleans, Louisiana)
  • The Hotel Modern (New Orleans, Louisiana)
  • Carnegie Science Center (Pittsburgh, Pennsylvania)
  • Old Town Historical Buildings (Sacramento, California)
  • Louis Science Center Planetarium (St. Louis, Missouri)
  • CN Tower, Toronto, Canada
  • Langevin Bridge, Calgary Canada
  • Niagara Falls, Niagara Falls Ontario and Niagara Falls New York
  • Olympic Stadium , Montreal , Canada
  • AAMI park, Melbourne, Australia
  • Morrison Bridge in Portland Oregon
  • Maritime section of Coastal Belt 3 in Panama City, Panama

Visit the WFH Facebook page to see more photos of these amazing landmarks in red and other highlights from World Hemophilia Day.

The WFH would like to thank Baxter, Bayer, Biogen, CSL Behring, Novo Nordisk, Precision Biologic, and Sobi for funding support of World Hemophilia Day 2015.

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Sacramento-Historic-Old-Town-Buildings
Denver-Coors-Field
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