Gina Schnabel’s earliest memories are of her father—World Federation of Hemophilia Founder Frank Schnabel—working with volunteers from around the world to raise awareness about bleeding disorders. She understood all too well the severe impact that an undiagnosed inherited bleeding disorder can have on someone, and witnessed the positive impact of her father’s work firsthand. And yet, it took decades before she realized what that truly meant for her. “I slipped through the cracks, even though I lived and breathed hemophilia from day one,” Gina shared during the recent WFH Global Summit on Women and Girls with Inherited Bleeding Disorders.
Sadly, Gina’s story is similar to thousands of other people from around the world. “It wasn’t until I was in my fifties that I really understood and made that distinction that I wasn’t just a carrier but someone with hemophilia, and it took some pretty serious consequences for that to happen.” That is why Gina chooses to support the work of the WFH through monthly giving. While she is happy to carry on her family’s legacy, the positive impact the WFH has on the lives of patients is what motivates her to support our mission.