Community news
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Ed Kuebler: 2019 Hemophilia Alliance Travel Grant recipient
With twenty-seven years of experience working with the bleeding disorder community, World Federation of Hemophilia (WFH) Psychosocial Committee Chair and 2019 Hemophilia Alliance Travel Grant...
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Experience of the WFH twinning between Abidjan and Brussels
The World Federation of Hemophilia (WFH) Twinning Program improves care for people with bleeding disorders in emerging countries through a formal, two-way partnership between two...
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Hear our voices: women with inherited bleeding disorders
For years, women with bleeding disorders did not have the same level of recognition as their male counterparts. All too often, they were incorrectly diagnosed,...
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Global VWD Call to Action leading change around the world
Every important movement starts with the realization that something needs to change, and that that change can happen through collective action. People with von Willebrand...
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A family affair: meet community leader Madonna McGuire Smith
Madonna McGuire Smith, Executive Director of the Hemophilia Foundation of Oregon (HFO), has been working with the bleeding disorder community for eleven years. She always...
