Community news
-
Global VWD Call to Action leading change around the world
Every important movement starts with the realization that something needs to change, and that that change can happen through collective action. People with von Willebrand...
-
A family affair: meet community leader Madonna McGuire Smith
Madonna McGuire Smith, Executive Director of the Hemophilia Foundation of Oregon (HFO), has been working with the bleeding disorder community for eleven years. She always...
-
Chew “Kim” Yin: mother, VWD patient and carrier finds balance
Chew “Kim” Yin understands balance and how difficult it can be to maintain in life if you do not have family and a community there...
-
From A to B: Mutala’s Journey
Less than 200 miles separates the capital cities of Dakar, Senegal and Banjul, The Gambia on Africa’s west coast. Traffic regularly flows between the two...
-
Gambian boy receives proper treatment thanks to WFH Humanitarian Aid Program
Thanks to the direct intervention of the WFH Humanitarian Aid Program, a Gambian boy is finally receiving appropriate care for his bleeding disorder. Originally diagnosed...
-
General Secretary of Hemophilia Society of Bangladesh talks about outreach
Najmul Alam—General Secretary of Hemophilia Society of Bangladesh—talked to the World Federation of Hemophilia (WFH) about the importance, rewards and challenges of conducting outreach and...
-
Medical Student, sister, carrier—one youth leader’s story
Jo Kroll, a native of Tartu, Estonia, barely remembers a time in her life when bleeding disorders were not part of her day-to-day life. At...
-
Miniseries follows families impacted by tainted blood tragedy
A new miniseries, based on the Canadian tainted blood tragedy, premiers on Canadian television and online on January 9, 2019. “Unspeakable” follows the lives of...
-
IHS wins Patient Organisation Project of the Year award
Irish Haemophilia Society (IHS) won the “Patient Organisation Project of the Year award” for their 50th Anniversary program at the Irish Healthcare Awards on October...
-
Assad Haffar receives 2018 Inspiration Award
Assad Haffar, MD, Director of Humanitarian Aid for the World Federation of Hemophilia (WFH), has received the Save One Life 2018 Inspiration Award. This award...
