Community news
-
Medical Student, sister, carrier—one youth leader’s story
Jo Kroll, a native of Tartu, Estonia, barely remembers a time in her life when bleeding disorders were not part of her day-to-day life. At...
-
Miniseries follows families impacted by tainted blood tragedy
A new miniseries, based on the Canadian tainted blood tragedy, premiers on Canadian television and online on January 9, 2019. “Unspeakable” follows the lives of...
-
IHS wins Patient Organisation Project of the Year award
Irish Haemophilia Society (IHS) won the “Patient Organisation Project of the Year award” for their 50th Anniversary program at the Irish Healthcare Awards on October...
-
Assad Haffar receives 2018 Inspiration Award
Assad Haffar, MD, Director of Humanitarian Aid for the World Federation of Hemophilia (WFH), has received the Save One Life 2018 Inspiration Award. This award...
-
Nejiba Chayah: Q&A with a Susan Skinner Memorial Fund recipient
The Susan Skinner Memorial Fund (SSMF) endowment was established in 2007 by the World Federation of Hemophilia (WFH) USA to support the training, education, and...
-
Hemophilia no roadblock for accomplished Korean pianist
Korean pianist Kangwoo Jin has an ambitious dream: to perform and teach piano as a career. For most individuals, the intense competition in the music...
-
Amanda Brito del Pino: Q&A with a Susan Skinner Memorial Fund recipient
The Susan Skinner Memorial Fund (SSMF) endowment was established in 2007 by the World Federation of Hemophilia (WFH) USA to support the training, education, and...
-
Cedric Hermans named as Editor-in-Chief of Haemophilia journal
Cedric Hermans, MD—Medical Member for the World Federation of Hemophilia (WFH) board of directors—has been named Editor-in-Chief of Haemophilia journal, a Wiley publication. Hermans takes...
-
EHC launches advocacy video on a set of new EDQM recommendations
The European Haemophilia Consortium (EHC) recently launched an advocacy video on a set of new European Directorate for the Quality of Medicines (EDQM) recommendations. From the EHC: What makes the difference...
-
Update on Shire and Roche/Genentech patent dispute regarding Hemlibra
Update: On March 28, 2018, Chugai Pharmaceuticals, a subsidiary of Roche, announced that a Japanese court ruled that the hemophilia treatment product Hemlibra (emicizumab) does...
