Community news
-
Nejiba Chayah: Q&A with a Susan Skinner Memorial Fund recipient
The Susan Skinner Memorial Fund (SSMF) endowment was established in 2007 by the World Federation of Hemophilia (WFH) USA to support the training, education, and...
-
Hemophilia no roadblock for accomplished Korean pianist
Korean pianist Kangwoo Jin has an ambitious dream: to perform and teach piano as a career. For most individuals, the intense competition in the music...
-
Amanda Brito del Pino: Q&A with a Susan Skinner Memorial Fund recipient
The Susan Skinner Memorial Fund (SSMF) endowment was established in 2007 by the World Federation of Hemophilia (WFH) USA to support the training, education, and...
-
Cedric Hermans named as Editor-in-Chief of Haemophilia journal
Cedric Hermans, MD—Medical Member for the World Federation of Hemophilia (WFH) board of directors—has been named Editor-in-Chief of Haemophilia journal, a Wiley publication. Hermans takes...
-
EHC launches advocacy video on a set of new EDQM recommendations
The European Haemophilia Consortium (EHC) recently launched an advocacy video on a set of new European Directorate for the Quality of Medicines (EDQM) recommendations. From the EHC: What makes the difference...
-
Update on Shire and Roche/Genentech patent dispute regarding Hemlibra
Update: On March 28, 2018, Chugai Pharmaceuticals, a subsidiary of Roche, announced that a Japanese court ruled that the hemophilia treatment product Hemlibra (emicizumab) does...
-
WFH Humanitarian Aid Program: Supporting the dream of corrective surgery for patients in India
The availability of clotting factor concentrates (CFC) treatment is critical when it comes to the level of care a medical establishment can provide for hemophilia...
-
Alain Weill visits India to show WFH support
In January, Alain Weill, President of the World Federation of Hemophilia (WFH), visited two Hemophilia Treatment Centres (HTCs) in Bengaluru, India, delivered three talks, and...
-
Humanitarian Aid plays important role in Uganda
Many developing countries have challenges providing their bleeding disorders communities with adequate support. This is especially true of Uganda—a country that not only struggles with...
-
WFH mourns passing of Vladimir Ilijin (1956 – 2017)
It is with great sadness that the World Federation of Hemophilia (WFH) learned of the passing of Vladimir Ilijin, President of the Serbian Haemophilia Society...
