Congress Daily 2018
-
Addressing clinical and psychological issues surrounding menstruation and hemophilia
Hemophilia has traditionally been viewed as a condition that affects men but not women. However, both males and females carry the hemophilia gene from one...
-
Reminder—date change for “WFH Humanitarian Aid Program: Catalyst towards global”
The session titled “WFH Humanitarian Aid Program: Catalyst towards global change” will take place today from 10:15 to 11:45 in the Showcase Theatre of the...
-
Closing the global gap—fifteen years of progress
The achievements of the Global Alliance for Progress (GAP) Program, one of the key WFH development programs, were celebrated on Day 3 of the WFH...
-
Not to be missed! WFH Twinning event
The WFH Twinning Program aims to improve hemophilia care in emerging countries through a formal, two-way partnership between two hemophilia organizations or treatment centres.
-
World Bleeding Disorders Registry: Moving Forward
The World Bleeding Disorders Registry (WBDR) aims to provide a global platform for hemophilia treatment centres (HTCs) to collect standardized patient data. During the session...
-
How to measure outcomes in hemophilia: patient, physician and payer perspectives
Prophylaxis is costly and necessary throughout the patient’s life. The evaluation of treatment outcomes can help secure access to hemophilia therapy and improve its efficiency...
-
Time well spent with the WFH founding family
Congress participants had the opportunity to meet the family of Frank Schnabel, the Canadian businessman born with severe hemophilia A, who founded the WFH in...
-
Global VWD Call to Action promoted at Congress
Luisa Durante, Program Development Manger, World Federation of Hemophilia (WFH) gathered people with von Willebrand disease (VWD) at the Resource Centre of the WFH 2018...
-
Miguel Tezanos receives WFH International Healthcare Volunteer Award
Established in 2004, the World Federation of Hemophilia (WFH) International Healthcare Volunteer Award honours a volunteer healthcare professional who has contributed significantly to further the...
-
Alain Weill issues strong Calls to Action
Marijke van den Berg, MD, World Federation of Hemophilia (WFH) Vice President, Medical, opened the WFH President’s Address by welcoming attendees and introducing Alain Weill,...
