Medical news
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Unexpected cases of sporadic CJD in patients with bleeding disorders reported
Investigators have reported diagnoses of sporadic Creutzfeldt-Jakob disease (sCJD) in two patients with bleeding disorders in the United Kingdom who died in 2014. The WFH...
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The European Haemophilia Consortium highlights Wildbad Kreuth recommendations on optimal treatment of haemophilia in Europe
In light of World Haemophilia Day, the European Haemophilia Consortium (EHC) took the opportunity to highlight an important set of 12 new consensus recommendations directed...
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Experts evaluate options for the treatment of hemophilia in the developing world
On December 16, 2016, three experts on the treatment of hemophilia shared their experiences and recommendations during the Treatment Options for Hemophilia in the Developing...
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Roche statement on emicizumab clinical trial adverse event
Roche has released the following statement to the WFH following the death of a patient in a clinical trial. The WFH expresses our sincere condolences...
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A powerful new tool for advancing medical research
To advance global knowledge on diagnosis, clinical course, and treatment of bleeding disorders, data are needed that capture the entire patient experience from around the...
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The World Bleeding Disorders Registry – final stages of the pilot program
In my VP Medical Column in the April 2016 issue of Hemophilia World, I announced that the World Federation of Hemophilia (WFH) would launch a...
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WFH clinical research grant program updated for 2017
The WFH Clinical Research Grant Program (CRGP) provides support for international clinical investigations related to inherited bleeding disorders. Since the grant program was launched in...
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WFH eLearning Platform showcases lab manual videos
Every year around the world, the WFH provides multiday workshops to train laboratory professionals. Fellows of the International Hemophilia Training Centre (IHTC) Program also receive...
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Report on the Annual Global Survey 2015 now available
The Report on the Annual Global Survey 2015 is now available in print and online at www.wfh.org/globalsurvey. The report...
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WFH Vice President Medical: The future of hemophilia treatment is very promising
Hemophilia treatment has entered an exciting era, with new products making diagnosis and treatment available for a far larger population than ever before, said WHF...
