WFH events
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WFH Humanitarian Aid Program improves quality of life for many
For thousands of people around the world with a bleeding disorder, access to basic care is a daily challenge. The WFH Humanitarian Aid Program aims to...
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What does quality of life mean to you?
Deon York, Lay member, WFH Board of Directors, moderated a session yesterday called, “What does quality of life mean to you? Living with (an inherited)...
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Today’s schedule: sessions at the WFH Virtual Summit on June 17
Here are the sessions happening today at the WFH Virtual Summit. For more information, please click here. 09:00 – 10:00 Free Papers: Late-Breaking Moderator: Mike Makris...
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International VWD guidelines development collaboration exemplifies patient involvement
Healthcare professionals and people with von Willebrand disease (VWD) from around the world have been unified in identifying a pressing need for international clinical guidelines...
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AFH receives the 2020 WFH International Award for Outstanding Service
Established in 2010, the International Award for Outstanding Service is given to an individual or an organization that has demonstrated outstanding service to the global...
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Best-practices for COVID-19 covered in session
Tuesday’s session, “Emerging from COVID – defining a new normal”, moderated by Declan Noone, looked at how the COVID-19 pandemic is affecting our community, and...
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Bayer celebrates one year of support of WFH Humanitarian Aid Program
The WFH Humanitarian Aid Program aims to improve the lack of access to care and treatment for people with inherited bleeding disorders in developing countries,...
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Speakers cover the need for long-term data on the safety and efficacy of gene therapy
Tuesday’s session, “Critical need for harmonized post-marketing surveillance in gene therapy” looked at the urgent need for a mechanism to collect long-term data on the...
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Quality of life for PWH discussed in plenary
Yesterday, Deon York, Lay member, WFH Board of Directors, moderated the session “Multidisciplinary plenary: Quality of life”. The session looked at the role of pain...
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Roche: Join our symposia program on “Elevating patient care in hemophilia”
Roche: Join our symposia program on "Elevating patient care in hemophilia"
