WFH news
-
IHTC Fellowship Program impact years in the making
The World Federation of International Hemophilia Training Centre (IHTC) Fellowship Program was launched in 1972, and in the more than four decades since its inception,...
-
Alnylam Suspends Fitusiran Dosing due to Thrombotic Event in Phase 2 open-label extension study
The WFH was saddened to learn of the death of a hemophilia A patient taking part in the Phase II trial of fitusiran, in development...
-
2017 Clinical Research Grant recipients announced
The WFH is happy to announce the 2017 Clinical Research Grant recipients. Research grants are awarded to outstanding international investigators conducting important clinical and diagnostic research with global...
-
WFH supports capacity-building initiative in southeast Asia
Patient organization leaders gathered during the Association of Southeast Asian Nations (ASEAN) Hemophilia Network Workshop in May, taking part in trainings to help improve hemophilia...
-
2016 Twins of the Year help make a difference
The WFH Hemophilia Treatment Centre (HTC) 2016 Twins of the Year have made a significant improvement in the care and diagnosis of people in the...
-
WFH signs Memorandum of Understanding with newly formed Coalition of the Americas ensuring program development and collaboration within the region
Strengthening the regional presence of the World Federation of Hemophilia (WFH) is one of the organization’s priorities. As the mission of the WFH outlines, together...
-
Accurate diagnosis will lead to effective treatment
Identification of new people with bleeding disorders can only occur through active outreach. Once identified, the need for diagnosis is imperative. As outlined in the...
-
Profile of a WFH Professional Affiliate: Daniela Neme, MD
In May 2017, the World Federation of Hemophilia (WFH) had the opportunity to talk with Daniela Neme, MD, Medical Director for the Hemophilia Foundation in...
-
WFH World Bleeding Disorders Registry is here
Following the success of the World Federation of Hemophilia (WFH) World Bleeding Disorders Registry (WBDR) pilot study—and with funding confirmed—the WFH is launching the full...
-
WFH Twins of the Year 2016: The Tanzania experience
Prior to the WFH Hemophilia Organization Twinning (HOT) Program partnership with the Hemophilia Ontario of the Canadian Hemophilia Society, patients of the Haemophilia Society of...
