WFH news
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WFH World Bleeding Disorders Registry pilot study complete
The objective of the World Federation of Hemophilia (WFH) World Bleeding Disorders Registry (WBDR) is to develop a database of high quality, real world data...
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Thoughts from the December 2016 Youth Workshop
“Dear Mr. Parkinson, I would like to inform you that the World Federation of Hemophilia is organizing a Youth Leadership Workshop in Barcelona, Spain, from...
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A New Era for Hemophilia World Readers in 2017
The WFH is happy to announce that more Hemophilia World content will be available online for readers beginning in January 2017. Currently, Hemophilia World is...
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Cornerstone Initiative launched in Zambia
“This was a wonderful opportunity to learn and engage with my fellow physiotherapists from across Zambia. We are now better placed to pass on the...
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Recipients double as WFH Humanitarian Aid Program expands
It has only been one year since the expansion of the World Federation of Hemophilia (WFH) Humanitarian Aid Program. In that short period of time,...
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New WFH IEQAS pilot initiative
The WFH International External Quality Assessment Scheme (IEQAS) Program recently launched a new pilot project to further assist participating laboratories that continue to have outwith...
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GAP program in Vietnam
On September 21, 2016, in Thanh Hóa, Vietnam, a Memorandum of Understanding was signed by the Ministry of Health of the Socialist Republic of Vietnam...
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Gaining further insight into the world of rare diseases
This year, the World Federation of Hemophilia (WFH) became a member of Rare Diseases International (RDI), an organization with a mission to be a strong...
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The World Bleeding Disorders Registry – final stages of the pilot program
In my VP Medical Column in the April 2016 issue of Hemophilia World, I announced that the World Federation of Hemophilia (WFH) would launch a...
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WFH clinical research grant program updated for 2017
The WFH Clinical Research Grant Program (CRGP) provides support for international clinical investigations related to inherited bleeding disorders. Since the grant program was launched in...
