The Ministry of Health and Social Protection (MSPS) in Colombia organized the first international symposium on orphan diseases in November 2015.
In 2013, the World Federation of Hemophilia (WFH) signed a memorandum of understanding, through the WFH Global Alliance for Progress Program, with the MSPS in order to improve the organization of care in the Colombia. This symposium continues this partnership through the GAP Program between Colombia and the WFH.
During the symposium, Dr. German Escobar, Head of the Office of Quality within the MSPS, discussed the advances and improvements in hemophilia care. “Colombia has made great advances in establishing one of the most sophisticated monitoring and reporting systems of care in hemophilia and other related bleeding disorders in the world,” said Dr. Escobar. “This will allow the government and other actors in the health care system to have valuable information throughout the continuum of care from diagnosis to treatment and rehabilitation, with the objective of being able to take more appropriate measures to improve the quality of care, define in the best ways possible public policy and promote research.”
The WFH presented on the comprehensive management of hemophilia and shared models of how to structure care for people with hemophilia and other bleeding disorders. Dr. Bruce Evatt and Dr. Roshni Kulkarni, both WFH medical advisors, shared their experiences on the delivery of comprehensive care in hemophilia and other bleeding disorders.
“The development of hemophilia care in the country is becoming a benchmark for the management of other rare diseases within Colombia,” remarked Dr. Sergio Robledo, president of the Liga Colombiana de Hemofílicos. “The country has benefited from the experience of the WFH in developing better practices for care delivery and improving the quality of life of people with hemophilia and their families.”