WFH NETWORK

Community rallies around “The first step to care” for World Hemophilia Day

This year’s World Hemophilia Day theme was “The first step to care”—and the passion for care was clearly felt by everyone in the inherited bleeding disorders community on April 17.

Thousands of people shared their stories throughout the world, and the WFH Facebook page, LinkedIn page and Twitter timeline saw hundreds of updates on the big day.

This year, the WFH launched a new World Hemophilia Day microsite designed to offer visitors information about inherited bleeding disorders, as well as communications material to support them in creating their own activities. The site also has a dedicated space where people can share their stories. The new site—www.worldhemophiliaday.org—was a great success. Over 5,600 people visited the platform, and the pages of the site were viewed over 12,000 times. Even more impressively, over 200 people shared their personal stories of living with—or supporting someone with—a bleeding disorder, and many comments and likes left by visitors proves that those stories were appreciated by the community.

Once again, landmarks around the world were part of the “Light it up Red” campaign this year. Over 70 landmarks took part, and the images of those landmarks were shared on social media worldwide. Scroll down here to see a small selection of those pictures.

If you missed World Hemophilia Day, or you want to find out more and read the stories of the people who took part, please visit the World Hemophilia Day website or visit Hemophilia World Online.

The WFH would like to thank our 2019 World Hemophilia Day sponsors for their continued support: Bayer, BioMarin Pharmaceutical Inc., Biotest, CSL Behring, F.Hoffman La-Roche Ltd., GC Pharma, Grifols, Kedrion, Novo Nordisk, Octapharma, Pfizer, Precision BioLogic, Sangamo Therapeutics, Sanofi Genzyme, Sobi, Spark Therapeutics, Takeda and uniQure.

Taiwan

Slovakia

Philippines

Australia

Australia

Kyrgyzstan

Canada

Croatia

Germany

U.S.A