This year’s World Hemophilia Day theme was “The first step to care”—and the passion for care was clearly felt by everyone in the inherited bleeding disorders community on April 17.
This year, the WFH launched a new World Hemophilia Day microsite designed to offer visitors information about inherited bleeding disorders, as well as communications material to support them in creating their own activities. The site also has a dedicated space where people can share their stories. The new site—www.worldhemophiliaday.org—was a great success. Over 5,600 people visited the platform, and the pages of the site were viewed over 12,000 times. Even more impressively, over 200 people shared their personal stories of living with—or supporting someone with—a bleeding disorder, and many comments and likes left by visitors proves that those stories were appreciated by the community.
Once again, landmarks around the world were part of the “Light it up Red” campaign this year. Over 70 landmarks took part, and the images of those landmarks were shared on social media worldwide. Scroll down here to see a small selection of those pictures.
The WFH would like to thank our 2019 World Hemophilia Day sponsors for their continued support: Bayer, BioMarin Pharmaceutical Inc., Biotest, CSL Behring, F.Hoffman La-Roche Ltd., GC Pharma, Grifols, Kedrion, Novo Nordisk, Octapharma, Pfizer, Precision BioLogic, Sangamo Therapeutics, Sanofi Genzyme, Sobi, Spark Therapeutics, Takeda and uniQure.