The European Haemophilia Consortium (EHC) recently launched an advocacy video on a set of new European Directorate for the Quality of Medicines (EDQM) recommendations.
From the EHC:
What makes the difference between living a high-quality life or one in pain and isolation? This video highlights the significance of the latest set of Wildbad Kreuth recommendations that are the basis of the 2017 Council of Europe Resolution on haemophilia care. Whether or not these recommendations are implemented by European Governments is what can equal the above mentioned difference in quality of life.