The First Summit of the Americas in hemophilia was held this past October in Panama City, Panama. The event was organized by the World Federation of Hemophilia (WFH), in collaboration with the Coalition of the Americas (CoA)—a strategic alliance of 27 WFH national member associations (NMOs) in the Americas and the Caribbean. The main objective of the summit was to develop a declaration on how to best support the care of people with hemophilia and other bleeding disorders in Latin America.
The Summit was attended by 60 people from 24 countries. Participants included members of 22 regional NMOs, hemophilia care givers, patient organization leaders, governmental representatives, and other related organizations, such as the Pan American Health Organization (PAHO), the Commission of Health Ministries of Central America (COMISCA), the High Cost Account of Colombia (CAC), and the Health Surveillance Agency (ANVISA) of Brazil.
At the end of the second day of the summit, a draft of the declaration was developed that will be submitted for review and discussion once it has been evaluated by medical specialists and community leaders. In its completed form, the declaration will serve to support NMO advocacy efforts in the region.
The WFH wishes to acknowledge the support of the National Hemophilia Foundation (NHF), Estudio PROBE, Takeda and Roche. Without their support the First Summit of the Americas would not have been possible.