WFH NETWORK

Gambian boy receives proper treatment thanks to WFH Humanitarian Aid Program

Thanks to the direct intervention of the WFH Humanitarian Aid Program, a Gambian boy is finally receiving appropriate care for his bleeding disorder. Originally diagnosed with hemophilia A, 8-year old Mutala was receiving treatment, but his condition was not improving. Growing more desperate, the Mutala’s father reached out to the World Federation of Hemophilia (WFH) for help. Assad E. Haffar, WFH Director, Humanitarian Aid, spoke with the father and determined that there was a chance that the boy had been misdiagnosed.

Mafaal Saidy, Mutala’s father

“I feel really thankful about WFH for their help and support… without it, my son’s life would be at risk and he might even have lost his life so I really appreciate their help.”

Since Gambia doesn’t have a hemophilia treatment centre, Haffar put Mutala’s father in contact with Saliou Diop, MD, Medical Member of the WFH Board of Directors and Director at the International Hemophilia Training Centre (IHTC) in Dakar. There, Diop provided a complete evaluation for Mutala free of charge. The only expenses the family had to assume were travel costs.

At the IHTC in Dakar, it was determined that there had indeed been a misdiagnosis—Mutala has hemophilia B, not A. Now with a correct diagnosis—and with donated factor in hand provided by the IHTC in Senegal—Mutala is being correctly treated and is faring much better.

About the WFH Humanitarian Aid Program

The expanded WFH Humanitarian Aid Program improves the lack of access to care and treatment by providing much needed support for people with inherited bleeding disorders in developing countries. By providing patients with a more predictable and sustainable flow of humanitarian aid donations, the WFH Humanitarian Aid Program makes it possible for patients to receive consistent and reliable access to treatment and care. None of this would be possible without the generous support of Sanofi Genzyme and Sobi, our Visionary Contributors; Grifols, CSL Behring, GC Pharma, our Corporate partners; and Roche and Bayer, our newest donors. To learn more about the WFH Humanitarian Aid Program, visit www.treatmentforall.org