On World Hemophilia Day, the 1st meeting of the newly established national Hemophilia Coordination Committee took place in Bishkek, Kyrgyzstan under the patronage of the Ministry of Health, and co-chaired by members of the national parliament, the Ministry of Labour and Social Development and the National Health Insurance Fund, with medical experts and patient representatives from different regions of Kyrgyzstan.
The Committee was created under the WFH Global Alliance for Progress (GAP) Program 2018-2020 with the Secretariat of the Public Association “Community of Handicapped – Hemophiliacs in Kyrgyz Republic”, an official national member organization (NMO) of the World Federation of Hemophilia. The first committee meeting discussed the main goals in improving the care and treatment for patients with hemophilia and other rare bleeding disorders in Kyrgyzstan, elected the permanent and ad-hoc members, elaborated on the Committee’s “rules of work” and set up a 5-year strategic plan.
The meeting took place a few weeks after a milestone orthopedic operation on a hemophilia patient performed through the WFH Twinning Program between the National Centre of Oncology and Hematology in Kyrgyzstan and the National Hematological Scientific Center of Russia, with factor concentrates donated by the WFH Humanitarian Aid Program.
To watch a video of the event please click here.