WFH NETWORK

GAP-organized Multidisciplinary National Hemophilia Forum held in Kyrgyz Republic

The first Multidisciplinary National Hemophilia Forum, organized under the Global Alliance for Progress Program (GAP) was held on September 19 to 20, 2018 in the Kyrgyz Republic. The GAP program aims to close the gap in the treatment and care for persons with hemophilia and other inherited bleeding disorders through government support and policy development, strengthening the medical expertise in the proper diagnosis and the subsequent provision of comprehensive care by well-trained multi-disciplinary team of experts, building community outreach and advocacy, ensuring and maintaining sustainable access to care and monitoring and evaluating patient outcomes.

The Multidisciplinary National Hemophilia Forum saw the signing of a Memorandum of Understanding between the Ministry of Health of the Kyrgyz Republic and the WFH for the implementation of the GAP Program from 2018 to 2020. This was followed by presentations on the current standard of care, treatment and diagnosis in Kyrgyz Republic, as well as presentation by guest speakers from Georgia, Russia, Serbia, Uzbekistan, Turkey and Armenia. The Forum was attended by over 70 participants from different regions of the Kyrgyz Republic.

The GAP Program is supported by funding from: Bayer, Biotest, CSL Behring, Kedrion, Pfizer, Sanofi Genzyme, Shire, and SOBI. The WFH would also like to thank the World Health Organization for its support of the Program.