The first webinar of the 4th WFH Gene Therapy Round Table (GTRT) was held in March, and covered the decision-making process for people with hemophilia who choose to receive gene therapy. The event explored many topics of interest to the community, such as:
The thought-provoking presentations raised questions about educational needs, patient preferences, identity, risk tolerance and more. Three people with hemophilia who received gene therapy described their personal experience of participating in a clinical trial, including their decision-making process, and their experience in the year following infusion.
Discussions on topics related to shared decision-making took place during the second half of the webinar, which will inform the development of a shared decision-making tool for people with hemophilia and health care professionals considering gene therapy.
The upcoming June and September WFH Gene Therapy Round Table webinars will continue the conversation on current global developments, and the expected challenges related to gene therapy for hemophilia.