On April 17, our community will come together to show support for the millions of women and girls affected by bleeding disorders.
It is our goal to use World Hemophilia Day as an opportunity to raise awareness for various issues that our global community faces as a whole. The reality is that women in the bleeding disorders community have faced many challenges securing diagnosis, treatment, and support in the past and it is our goal for all people who suffer from a bleeding disorder to come together, recognize one another, and provide much-needed support.
“It is our mission to improve and sustain care for all people with inherited bleeding disorders, including the girls and women within our community,” said Alain Weill, WFH President. “Whether women have a bleeding disorder themselves or are part of the support network for someone else within our community, we need to recognize that there can be a significant impact on their health and quality of life. On World Hemophilia Day this year, we recognize the many contributions that women have made to improve the lives of those with a bleeding disorder, either through their own advocacy or support of their loved ones.”
To mark World Hemophilia Day 2017, the WFH global community will come together online at www.worldhemophiliaday.org. This website provides a space for people to tell their story, discuss the challenges they have faced and provide support to one another. All will be invited to post their thoughts, and if they choose, share a photo, and have the opportunity to comment on one another’s posts.
We encourage our community to go to the WFH eLearning Platform at elearning.wfh.org to learn more about women and bleeding disorders, as well as access other educational resources including many webcasts, eLearning modules, and other tools
Our 2017 activities will also include a global campaign to light up landmarks around the world in red for World Hemophilia Day as we have done successfully in the past. We encourage our community to light a red light in their home or office as an individual effort to raise awareness in their immediate vicinity.
The WFH would like to thank our 2017 World Hemophilia Day sponsors for their continued support: