The World Federation of Hemophilia (WFH) Global National Member Organization Training (GNMOT) event took place May 17 to 19 in Glasgow, Scotland, before the start of the WFH 2018 World Congress. Lots of new faces were among the 115 participants from 89 countries who attended the event, including 23 youth fellows. Children attended the GNMOT for the first time and participated in the introduction of brand new In-HemoAction cards, a fun children’s game that now includes inhibitors (Congress participants are encouraged to collect their own In-HemoAction cards at the WFH Resource Centre). Delegates were treated to a live demonstration by local Glasgow-area children with hemophilia and their families.
The GNMOT event included four plenary sessions that focused best practices by national member organizations (NMOs), novel therapies in bleeding disorders, the WFH World Bleeding Disorder Registry and how it benefits patients, as well as general news from the WFH. Additional sessions included three youth group meetings, as well as a Q&A session with board members that proved very popular. International experts also presented interactive workshops that focused on topics such as fundraising, von Willebrand disease, building relationships and alliances with different stakeholders, and volunteer engagement.
Since its inception, GNMOT has been a great success and provides an opportunity for a representative from each NMO to participate in topical plenary and workshop training sessions with their peers from across the globe. It also enables participants to share information, meet old friends, and develop new relationships—thereby strengthening the international bleeding disorder community.
The Youth Fellowship Program is an important part of the GNMOT. Since 2004, the WFH has provided 128 youth fellowships to attend this event. The aim of the program is to support the development of future leaders in the international bleeding disorders community by providing training in leadership skills, resources, and the chance to meet other youth leaders from around the world. As well as participating in the GNMOT, youth fellows attend the WFH 2018 World Congress and the Annual Meeting of the General Assembly that follows Congress.