Everyone affiliated with the World Federation of Hemophilia (WFH) works hard to help make a difference in the lives of those in the bleeding disorders community. While empirical proof of the success of these initiatives can be found in the pages of the WFH Annual Global Survey, it’s also nice to hear the personal stories of those who are grateful for the help we can provide.
Here are three stories of individuals living in Venezuela and how the WFH has been able to make an impact in their day to day lives.
An increasing number of contributors within the global bleeding disorders community have accepted the challenge of providing a sustainable and predictable supply of donated products. The visionary contribution from Bioverativ and Sobi to the WFH Humanitarian Aid Program translates into 500 million IUs over five years (2015-2020). In addition, the eight-year commitment (2014-2021) from Grifols totaling 200 million IUs, along with a ten-year commitment (2009-2018) from CSL Behring for a total of 22 million IUs, and the three-year agreement (2017-2019) with Green Cross for 6 million IUs, there will now be a more predictable and sustainable flow of humanitarian aid donations to the global community. In addition, the initiatives of Project WISH and Project Recovery allow for the manufacturing of clotting factor concentrates from previously discarded cryopaste which provide treatment products to countries most in need.