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WFH Humanitarian Aid Program helps child go to school

The following story is an article written by a member of the global bleeding disorders community to the World Federation of Hemophilia (WFH). In this article, the mother of Marco—a young boy living in ­the Philippines—shares her story of how the WFH Humanitarian Aid Program has helped her son live a normal life and go to school with other children.

It was not easy when I first found out my son had Hemophilia. I was terrified for his life and his well-being. I had read articles that stated patients with hemophilia had short life spans and a low quality of life.

My son Marco was diagnosed with severe hemophilia a day after he was born. We were lucky to have been referred to our hematologist, Jeannie Ong, MD, from the start. It was through her that we were able to receive donations of Factor 8 treatment product from the World Federation of Hemophilia. I did not realize then what a huge impact that would make in our lives.

When I first joined the Hemophilia Association of Davao (HAnD), I saw what lack of treatment did to adult patients. Their joints looked swollen, their legs weak and skinny, and a number were either on crutches or in wheelchairs. I had always wondered whether that was to be my son’s fate too.

Marco is now 9 years old. Every now and then, we receive vials of factor 8 treatment product as low dose prophylaxis, but mostly as treatment for whenever he has bleeds. This has saved his life a couple of times and even enabled him to live close to what I would consider a normal childhood. He goes to school like other children, he plays with other kids, participates in school activities and has even won their school’s elocution contest. The only exception is, to be able to do it all, he needs his shots and we have been fortunate to be on the receiving end of such generous hearts.

While every parent dreams about their children succeeding in life, and becoming a doctor, a nurse, a pilot, an astronaut or an engineer, my dream is only for my son to live a normal life. This dream became a reality through the WFH Humanitarian Aid Program donations of factor 8 treatment product. Marco is growing up to be strong, healthy and happy boy. To all of you who have made this possible, thank you.

About the WFH Humanitarian Aid Program

The expanded WFH Humanitarian Aid Program improves the lack of access to care and treatment by providing much needed support for people with inherited bleeding disorders in developing countries. By providing patients with a more predictable and sustainable flow of humanitarian aid donations, the WFH Humanitarian Aid Program makes it possible for patients to receive consistent and reliable access to treatment and care. None of this would be possible without the generous support of Sanofi Genzyme and Sobi, our Visionary Contributors; Grifols, CSL Behring, GC Pharma, our Corporate partners; and Roche and Bayer, our newest donors. To learn more about the WFH Humanitarian Aid Program, visit www.treatmentforall.org

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