Nigeria is the most populous country in Africa, and yet the country’s only source of factor is the WFH Humanitarian Aid Program. Because of this reality, the WFH works closely with the Haemophilia Foundation of Nigeria—the country’s national member organization (NMO)—in order to facilitate factor donations. Over 22.7 million IUs have been donated to Nigeria through the WFH Humanitarian Aid Program since 2015—with nearly 6.4 million IUs sent to the country in 2019 alone.
The following story is an article written by a member of the global bleeding disorders community to the World Federation of Hemophilia (WFH). In this article, Akintunde Collins from Nigeria shares his story.
My name is Akintunde Collins and I want to use this opportunity to thank the Executive Director and Founder of the Hemophilia Foundation of Nigeria (HFN) Megan Adediran, Titilope A. Adeyemo, MD, and Bukola Arogundade of Lagos University Teaching Hospital for the love and compassion they showed to my family. My son Akintunde Richard was admitted at FMC Abeokuta on September 4, complaining of a headache and neck stiffness. He was found to have high blood pressure, and was later slated for brain surgery when one of the physicians discovered that he has hemophilia. They then cancelled the procedure. I got online to find out more about hemophilia and discovered there’s a Non-Governmental Organization (NGO) handling the distribution of factor [provided by the WFH Humanitarian Aid Program]. I was able to reach out to the NGO and Megan Adediran and Titilope A. Adeyemo immediately took action to help with the process. On 11th October my son was discharged and is now in good health. Thank you all!
The content above has been edited for clarity.
About the WFH Humanitarian Aid Program
The expanded WFH Humanitarian Aid Program improves the lack of access to care and treatment by providing much needed support for people with inherited bleeding disorders in developing countries. By providing patients with a more predictable and sustainable flow of humanitarian aid donations, the WFH Humanitarian Aid Program makes it possible for patients to receive consistent and reliable access to treatment and care. None of this would be possible without the generous support of Sanofi Genzyme and Sobi, our Visionary Contributors; Grifols, CSL Behring, GC Pharma, our Corporate partners; and Roche and Bayer, our newest donors. To learn more about the WFH Humanitarian Aid Program, visit www.treatmentforall.org.