Keeping the advocacy momentum going

Advocacy is an integral part of the work of our global bleeding disorders community, yet the demands of managing an effective advocacy campaign can become insurmountable when time and resources are scarce.

For this reason, the World Federation of Hemophilia (WFH) is pleased to announce the launch of a grant program that will ease this constraint.

“We had heard from national member organizations (NMOs) that they had limited time or physical resources to manage their advocacy campaigns. Once their momentum was lost, it was hard to regain,” said Gordon Clarke, chair of the Advocacy in Action working group of the WFH. “Our grant program is a new concept for the WFH and is an interesting and exciting aspect of advocacy initiatives within NMOs. The human support of an advisor, coupled with financial support and a dedicated staff member through the Advocacy in Action program can make the difference between a successful campaign and one that meanders over years with no clear results.”

Launched in 2010 to build on previous advocacy initiatives, the Advocacy in Action program, comprises three main elements. It offers tailored training workshops on a thematic and inter-regional basis, provides grants and individualized coaching to selected workshop participants, and offers an advocacy recognition award to share best practices among the community. The grant portion of the program seeks to maintain the momentum from the workshops through to the successful completion of the advocacy objectives of NMOs.

Five grants, amounting to over US$30,000, have been awarded so far to Latvia, Romania, Poland, Germany, and the U.K. For some recipients, progress is already becoming evident. “The Advocacy in Action grant program has given us access to ways of gathering data for our lobbying which we have never had access to before,” said Dan Farthing, policy and communications manager for the UK Haemophilia Society.

Radoslaw Kaczmarek, an active volunteer with the Polish Hemophilia Society, was also enthusiastic about the opportunities the grant provides. “The WFH grant tremendously increases our chances of success. It’s hard to imagine a better way to make a difference in the hemophilia community.”

All NMOs are eligible to participate in the Advocacy in Action program. For more information please contact us at [email protected].