WFH NETWORK

Key speakers to be part of Congress multidisciplinary program

The World Federation of Hemophilia (WFH) 2020 World Congress will feature a very rich multidisciplinary program geared towards the needs of patients. Experts will be covering topics such as how technology will revolutionize care, the role caregivers play in the treatment process, health economics, and the voice of women with bleeding disorders.

Here are six multidisciplinary program speakers who will be taking part in the WFH 2020 World Congress, which will take place in Kuala Lumpur, Malaysia, from June 14 to 17, 2020.

Name: Lorimer Moseley

Country: Australia

Positions: Senior Principal Research Fellow, NeuRA, National Health and Medical Research Council (NHMRC) Principal Research Fellow; Professor of Clinical Neurosciences & Foundation Chair in Physiotherapy, University of South Australia.

WFH 2020 Congress speaker topic: “Is there a gain to pain”

Bio: Lorimer Moseley is a pain scientist, educator and clinician who leads the Health Innovation in Implementation & Clinical Translation (IIMPACT) Research Concentration at the University of South Australia, Adelaide. He has authored 340 papers and five books. His public education and outreach articles and videos have had over seven million views. His own research focuses on understanding pain better, developing and testing better strategies to prevent and treat persistent pain, and implementing effective pain management strategies. He has a long-standing interest in using contemporary and innovative methods to “translate” pain science into concepts and language that clinicians and patients can both understand and integrate into their own decision making. His innovative experimental approaches—and ongoing commitment to education, translation and implementation—have been recognized through prizes and awards given out in in 14 countries.

Name: Chris Bombardier

Country: U.S.A

Position: Expeditions Coordinator

WFH 2020 Congress speaker topic: “I did it my way”

Bio: Chris found the magical world of outdoor experiences after completing his degree in Biology at Doane University, Nebraska, U.S.A. After working in the hemophilia research laboratory in his hometown of Denver, U.S.A, Chris decided to pursue his dream of climbing the “Seven Summits”—the highest mountains on each of the seven continents. To make this dream a little more interesting, Chris also has hemophilia. Through his blog “Adventures of a Hemophiliac”, Chris has shared how he has overcome this challenge to pursue his dream. His goal now in working with GutMonkey—an organization that offers adventure education for people with chronic medical conditions like hemophilia and other bleeding disorders—is to share his passion with others that live with chronic health conditions and to empower them through experiential learning.

Name: Claire McLintock

Country: New Zealand

Position: Clinical Director of Regional Maternity Services at National Women’s Health, Auckland City Hospital in New Zealand

WFH 2020 Congress speaker topic: “Aging and the issues that are pertinent to women”

Bio: Claire McLintock, MD, is a clinical and laboratory hematologist who specializes in obstetric medicine. She graduated from the University of Edinburgh, Scotland, and completed post-graduate training in hematology in Auckland, New Zealand, where she lives. She is based in National Women’s Health, Auckland City Hospital, New Zealand. Her clinical and research areas of interest are thrombotic and hemostatic disorders of women, with a special focus on pregnancy.

Name: Simon Fletcher

Country: U.K.

Position: Lead Haemophilia Research Nurse, Oxford University Hospital

WFH 2020 Congress speaker topic: “Gene therapy: the unfolding story”

Bio: Simon Fletcher has been working at the Oxford University Hospitals NHS Foundation Trust since 1991 in a number of fields, including Rheumatology, Orthopaedics, Respiratory Medicine and General and Neuro Intensive Care. Since 2012, he has been working in Haemostasis and Thrombosis Research at the Oxford Haemophilia and Thrombosis centre. In 2013, Fletcher completed a Master’s Degree in Medical Ethics and Law and is currently developing a project on the psychosocial implications of hemophilia care in an age of disruptive and curative therapies that will be developed into a Ph.D topic. Since 2014, he has been a member of the Haemophilia Nurse Association (HNA) in the U.K. and has been the association’s Vice Chair. Simon is also a nurse representative on the data access group of the United Kingdom Haemophilia Centre Doctors’ Organisation (UKHCDO), which reviews applications for data from the U.K.’s National Haemophilia Database.

Name: Jeanette Cesta

Country: U.S.A

Position: Executive Director of VWD Connect Foundation

WFH 2020 Congress speaker topic: “VWD: A model for addressing this unique population”

Bio: Jeanette Cesta is Executive Director of the VWD Connect Foundation and a U.S. education consultant for the bleeding disorder community. Cesta has been speaking nationally since 2010, presenting at medical conventions, hemophilia treatment centres (HTCs), hospital emergency rooms, bleeding disorder camps and at Congresses and national meetings for the National Hemophilia Foundation (NHF) and the Hemophilia Federation of America (HFA). She presented at the 2014 NHF VWD Summit in Washington D.C., U.S.A, and is a member of the NHF VWD Task Force. She chairs the Women with von Willebrand disease (VWD) working group for the ATHN National Hemophilia Program Coordinating Center. She received the NHF 2015 Volunteer of the year award and the 2016 New York City Hemophilia Chapter Award of Distinction. She has also displayed research posters at the WFH 2016 and WFH 2018 World Congresses, and co-organized the 2017, 2018 and 2019 National Type 3/Severe VWD Conferences. Cesta received her Bachelor of Science from Suffolk University, Boston, MA.

Name: Neil Pearson

Country: Canada

Position: Clinical Assistant Professor at the University British Columbia

WFH 2020 Congress speaker topic: “Approaches to Movement with Pain”

Bio: Neil Pearson is a physical therapist, a Clinical Assistant Professor at the University British Columbia, and a yoga therapist. He is an engaging educator and compassionate clinician, able to make the complex understandable, willing to share his knowledge and expertise in pain care, and always ready to learn more. Pearson’s most influential mentors and teachers have been the people in pain he has served.

Name: Brian O’Mahony

Country: Ireland

Position: Chief Executive of the Irish Haemophilia Society

WFH 2020 Congress speaker topic: “Access to care using innovative technologies”

Bio: Brian O’Mahony is the Chief Executive of the Irish Haemophilia Society. He represents the Society on the statutory National Haemophilia Council and he is the Vice Chair of the Haemophilia Product Selection and Monitoring Advisory Board. He previously served as Chair of the Irish Haemophilia Society for 17 years from 1987 to 2003 and as President of the WFH for 10 years from 1994 to 2004. He continues to work as a volunteer with the WFH and he assists several national member organisations (NMOs) on an ongoing basis in areas such as strategic planning and lobbying. In 2011, O’Mahony was elected President of the European Haemophilia Consortium (EHC), a post he currently holds. A medical scientist by profession, he is a Fellow of the Institute of Biomedical Sciences (U.K.) and a Fellow of the Academy of Clinical Science and Laboratory Medicine (Ireland). He also has post Graduate qualifications in Management and in Occupational Health and Safety. He is an assistant Professor in Health Service Management in Trinity College, Dublin. O’Mahony has severe hemophilia B.

In the coming months we will be releasing more information about the WFH 2020 World Congress program. We hope you continue to visit Hemophilia World Online to find out more.

To read about some speakers who will be part of the Congress medical program, please click here.

WFH 2020 World Congress in Kuala Lumpur

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