WFH NETWORK

Kyrgyz Republic hosts Regional Data Collection and Regional Lay Workshops

The World Federation of Hemophilia (WFH) hosted important events in Bishkek, Kyrgyz Republic this past September, including a Data Collection Workshop for Central Asia & South Caucasus and a Regional Lay Workshop on Fundraising and Program Management. The events were organized in partnership with the Ministry of Health of the Kyrgyz Republic, the Society of Disabled Haemophiliacs—a WFH national member association (NMO)—and two Hemophilia Treatment Centers in Bishkek (the National Center of Oncology and Hematology and the Hospital Center for Maternal and Child Welfare).

The Data Collection Workshop included sessions on the basics of quality data and the data collection cycle. It also focused on data reporting, including national patient registries, the WFH World Bleeding Disorders Registry (WBDR) and the WFH Annual Global Survey. It highlighted the value and importance of data collection and provided attendees with guidance on how to use data to better advocate for the care of people with inherited bleeding disorders in their country. This workshop was attended by NMO representatives, Ministry of Health representatives, and healthcare professionals from eight countries in Central Asia and Southern Caucasus.

The Regional Lay Workshop provided up-to-date theoretical materials on strategies and methods of effective fundraising and on project lifecycle and program management elements—from project idea development to proposal writing. Twenty-five people, representatives and activists from seven NMOs attended the workshop. Through discussion and group exercises, participants had the chance to apply knowledge, generate questions regarding the adaptation of the discussed theories to the environments in their countries and share their experiences with the group.