There is more and more discussion now about women and girls in the bleeding disorders community—but it is not enough, and there is still room to talk more about what can be done for these underserved patients. Greater awareness needs to be fostered in the community, and more action is needed by men and women alike to improve the quality of life of these patients.
The WFH has been working to ensure greater inclusion for women and girls with bleeding disorders (WGBD) in the community, and has been listening to the stories and challenges patients have in getting access to adequate care and treatment. As a first step to help address the challenges WGBD face, the WFH created the Women with Inherited Bleeding Disorders Committee. This committee has been pivotal in developing educational sessions on both clinical management and women’s empowerment. There were more sessions on WGBD at the 2020 Virtual Summit than at any other international WFH event.
In order to further address the gaps in education and knowledge, the WFH Initiative for Women and Girls was developed. This endeavour will focus on key areas such as training for health care professionals so they can provide comprehensive care for WGBD patients. The initiative will also offer recommendations to national member organizations (NMOs) on how to conduct outreach and awareness campaigns on issues such as early diagnosis, inclusion and impacts on WGBDs. It will also encompass knowledge exchanges as well as the sharing of best practices between healthcare professionals (HCPs), patients and NMOs.
The WFH Initiative for Women and Girls will be launched on November 19, 2020, during the first-ever WFH Global Summit on Women and Girls. The launch will take place during an interview-style session led by Sharon Caris, and featuring special guests such as Cesar Garrido, WFH President; former WFH president Mark Skinner; Jameela Sathar, MD, from Malaysia; and Luisa Durante on behalf of the WFH. The session will cover the development of the initiative, its importance, and why men—like women—need to care about WGBDs.
To register for the WFH Global Summit on Women and Girls, please click here.
For more information, please contact Luisa Durante at [email protected].