The World Federation of Hemophilia (WFH) Report on the Annual Global Survey (AGS) 2018 is now available! This survey provides a global snapshot of the progress in hemophilia patient identification and access to care. It is designed to give WFH national member organizations (NMOs), healthcare providers and policy makers an overview of patterns and trends in treatment, and the ability to identify areas where improvements are necessary.
This year marks a major milestone in the history of the AGS: it’s the 20th anniversary of the survey! The last two decades have seen the report evolve in important ways. A record number of NMOs are taking part in the survey. The current report features 125 NMOs from all around the world—an increase of 92% since 1999. In addition to countries like Australia, Germany, Ireland, South Korea, New Zealand, Poland, Portugal, and Venezuela who have been contributing for the full two-decade history of the report, the 2018 report has the Bahamas, Benin, Namibia, and Tajikistan contributing for the very first time.